The Patient's Journey - the Time to Final Diagnosis in Patients With SiNET

Status Completed

Clinical Trial Summary

"The patient's journey" is an interview based study assessing the patients' experience from the first symptoms to a final diagnosis focusing on patients with small intestinal neuroendocrine tumors.

Clinical Trial Description

The project focus on patients with small intestinal neuroendocrine tumors (SiNET's) with an incidence of 1-2/100 000 yearly. The primary tumor(s) are often small and symptoms usually arise when the disease has become metastatic with hormonal symptoms and/or symptoms due to local growth. As the tumors grow slowly and the symptoms in many cases are rather diffuse and develops gradually over a long time period there is often a long delay from onset to a final diagnosis both depending on "patient's delay" and "doctor's delay" The aim of the current project is to map and analyze the patient's journey from the first appearance of symptoms to the time point of a final diagnosis and to try to identify factors contributing to a delayed process.

The method is interview based and the interviews will be analyzed through the Design Thinking Methodology ;

Study Design

Related Conditions & MeSH terms

Neuroendocrine Tumors

Clinical Trial Details

NCT number	NCT03840720
Study type	Observational
Source	Vastra Gotaland Region
Contact
Status	Completed
Phase
Start date	February 1, 2019
Completion date	December 31, 2019

View Details

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