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Pulmonary Care and Research Collaborative Patient Registry

Interstitial Lung Disease Clinical Trial

Official title:
Pulmonary Care and Research Collaborative Patient Registry

Clinical Trial Summary

The purpose of this research study is to build and maintain a registry of people with interstitial lung disease (ILD). Medical information collected for this registry may be used to advance ILD and pulmonary research and improve patient care. This is an observational registry. Participants will not receive any investigational treatments or investigational drugs as part of their participation in this registry.

Clinical Trial Description

The registry will contain longitudinal medical histories of ILD patients. The creation and curation of the registry with utilize release of information services, biomedical informatics methods and human expert reviews. Among the registry's long-term goals is to utilize its data and informatics resources to study and advance ILD diagnosis and treatment. The registry will be developed with a set of capabilities to consistently, repeatedly, and economically build research-grade datasets that allow cohort development from natively unstructured and non-standard phenotypic clinical and imaging data. ;

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT05445817
Study type Observational [Patient Registry]
Source Pulmonary Care and Research Collaborative Limited
Contact Aliaa Barakat, PhD
Phone 617-895-6636
Email aliaa.barakat@ildcollaborative.org
Status Recruiting
Phase
Start date July 2022
Completion date March 2024
View Details
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