Haemophilia Clinical Trial
Official title:
Effectiveness of the uPatient Platform in the Fulfillment of the Prophylactic Treatment in Patients With Hemophilia
Research project whose main objective is to evaluate the use of a technology platform (uPatient) to register the prophylactic treatment of patients with hemophilia treated in different Hematology and Hemotherapy services of several hospitals in Spain.
The data obtained in this project will identify the level of compliance to the pharmacological treatment of patients with hemophilia prophylaxis. They will use different psychosocial questionnaires based on scientific evidence and the reliability of these, as well as its specific design for patients with hemophilia. Clinical data were also obtained regarding the joint of patients participating in the study state. ;
Status | Clinical Trial | Phase | |
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Completed |
NCT02229331 -
Biomechanical Determinants and Patterns Associated to the Pathophysiological Cascade of Ankle Arthropathy in Children With Haemophilia: Non-invasive In-vivo Measurement of Foot Joints in Children With Haemophilia During Gait.
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Completed |
NCT02870114 -
National Survey of People With Haemophilia in Portugal
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N/A | |
Recruiting |
NCT02197611 -
Development of a Specific Measure for Assessing Adherence in Adult Patients With Hemophilia.
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N/A | |
Unknown status |
NCT02582450 -
Validation of a Specific Measure for Assessment of Compliance With Treatment in Patients With Hemophilia
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N/A | |
Completed |
NCT05138224 -
Prevalence of Autistic Spectrum Disorder (ASD) in Children With Haemophilia
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Recruiting |
NCT03287999 -
Inter Individual Variability in Initiation Pathway Activation and Regulation and Phenotypic Heterogeneity in Patients With Haemophilia A and B
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Completed |
NCT02825667 -
Effectiveness of the Myofascial Therapy in the Hemophilic Arthropathy of Ankle
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N/A | |
Completed |
NCT03818529 -
ATHN 8: Previously Untreated Patients (PUPs) Matter Study
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Completed |
NCT05108480 -
Self-myofascial Release With Foam Roller in Patients With Hemophilic Knee Arthropathy
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N/A | |
Completed |
NCT02781233 -
A Progressive Resistance Training Program in Patients With Haemophilia
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N/A | |
Active, not recruiting |
NCT02512211 -
Validation of Questionnaires HAL and HEP
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N/A | |
Not yet recruiting |
NCT01623960 -
Quality of Life in Adult Patients With Severe Haemophilia in Turkey
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N/A | |
Recruiting |
NCT02191436 -
Adherence to Treatment in Hemophilia
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N/A | |
Completed |
NCT03264014 -
Combining Registry Data in Haemophilia: TARGET H
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N/A | |
Recruiting |
NCT02198430 -
Multidisciplinary Evaluation of Patients With Hemophilia
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N/A | |
Not yet recruiting |
NCT06046235 -
Virtual Evaluations of Joint Health Using Wearable Sensors in Persons With Haemophilia (VESPA)
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Completed |
NCT03529474 -
Psychology and Physiotherapy Approach of Chronic Pain in Patients With Hemophilia
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N/A | |
Completed |
NCT05425888 -
Functional and Proprioceptive Status in Patients With Hemophilic Ankle Arthropathy
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Recruiting |
NCT03914209 -
Extended Half-Life (EHL) Clotting Factor for Improving the Musculoskeletal Health of Patients With Hemophilia
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Completed |
NCT04205188 -
The Effects of Therapeutic Exercises on Kinesiophobia in Haemophilic Patients.
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N/A |