Haemophilia Clinical Trial
Official title:
Multidisciplinary Assessment of the Physical, Functional and Psychosocial Alterations in Patients With Hemophilia. An Observational Study.
Multidisciplinary assessment of the physical, functional and psychosocial alterations in
patients with hemophilia around the country. The aims of this study are:
- Descriptive study of joint involvement in hemophilia patients with and without a
history of hemarthrosis.
- Descriptive study of the alterations of periarticular muscle strength as a result of
acute processes or the development of chronic articular sequelae.
- Descriptive study of biomechanical changes in lower limb joints and their impact on
gait in patients with hemophilia.
- Descriptive study of the joint space, regarding hemarthrosis and synovitis,
intraarticular by ultrasonography.
- Descriptive study of the relationship between skeletal muscle pathology in patients
with hemophilia and their perceptions of it and their quality of life.
Observational study that will allow us:
Analyze and evaluate the skeletal muscle of patients with hemophilia involvement.
Describe the periarticular muscular deficit, depending on the degree of injury, age,
presence of inhibitors and the development of physical activity.
Identify the relationship between the functional deficit by clinical assessment performed
with the use of validated scales measure force production with patients.
Observe the presence of joint bleeds in children with hemophilia and synovial hypertrophy
developing therein.
Detect biomechanical abnormalities of the lower limbs and their impact on gait in patients
with hemophilia.
Assess the factors that influence the perception of illness and quality of life of patients
with hemophilia.
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Observational Model: Cohort, Time Perspective: Prospective
| Status | Clinical Trial | Phase | |
|---|---|---|---|
| Completed |
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Biomechanical Determinants and Patterns Associated to the Pathophysiological Cascade of Ankle Arthropathy in Children With Haemophilia: Non-invasive In-vivo Measurement of Foot Joints in Children With Haemophilia During Gait.
|
||
| Completed |
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National Survey of People With Haemophilia in Portugal
|
N/A | |
| Recruiting |
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Development of a Specific Measure for Assessing Adherence in Adult Patients With Hemophilia.
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N/A | |
| Unknown status |
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N/A | |
| Completed |
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Prevalence of Autistic Spectrum Disorder (ASD) in Children With Haemophilia
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| Recruiting |
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Inter Individual Variability in Initiation Pathway Activation and Regulation and Phenotypic Heterogeneity in Patients With Haemophilia A and B
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| Completed |
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Effectiveness of the Myofascial Therapy in the Hemophilic Arthropathy of Ankle
|
N/A | |
| Completed |
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ATHN 8: Previously Untreated Patients (PUPs) Matter Study
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| Completed |
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N/A | |
| Completed |
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Quality of Life in Adult Patients With Severe Haemophilia in Turkey
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| Recruiting |
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Adherence to Treatment in Hemophilia
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| Completed |
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Combining Registry Data in Haemophilia: TARGET H
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Virtual Evaluations of Joint Health Using Wearable Sensors in Persons With Haemophilia (VESPA)
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| Completed |
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Psychology and Physiotherapy Approach of Chronic Pain in Patients With Hemophilia
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| Completed |
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Functional and Proprioceptive Status in Patients With Hemophilic Ankle Arthropathy
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Extended Half-Life (EHL) Clotting Factor for Improving the Musculoskeletal Health of Patients With Hemophilia
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| Completed |
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N/A |