Haemophilia Clinical Trial
Official title:
Psychosocial Factors and Adherence to Treatment in Patients With Hemophilia. A Multicenter Study
Psychosocial factors and adherence to treatment in patients with hemophilia. A multicenter study. Multicenter cross sectional study of patients with hemophilia and their families
Research project whose main objective is to assess adherence and major psychosocial issues
affecting patients with hemophilia and their families treated at the Hematology and
hemotherapy Services Clinical Hospital Universitario Virgen de la Arrixaca of Murcia and the
University Hospital Carlos Haya, Malaga.
The data obtained in this project will identify those psychosocial aspects affecting
patients and their families about the disease, its evolution and treatment of it. They will
use different psychosocial questionnaires based on scientific evidence and the reliability
of these, as well as its specific design for hemophilia patients. The main characteristics
of the study are:
- Descriptive study of adherence to treatment of pediatric patients, adolescents and
adults with hemophilia.
- Descriptive study of family functioning, perceived stress, anxiety and quality of life
in parents of children with hemophilia under 14 years and adolescents with hemophilia,
depending on the administered medical treatment, clinical and musculoskeletal patient
situation.
- Descriptive study of illness behavior or perception of illness, perceived stress,
anxiety, quality of life and coping strategies of young adults with hemophilia,
depending on the medical treatment administered, and skeletal muscle clinical situation
of the patient.
- Validation of psychosocial assessment tools in patients with hemophilia and their
families.
;
Observational Model: Cohort, Time Perspective: Cross-Sectional
| Status | Clinical Trial | Phase | |
|---|---|---|---|
| Completed |
NCT02229331 -
Biomechanical Determinants and Patterns Associated to the Pathophysiological Cascade of Ankle Arthropathy in Children With Haemophilia: Non-invasive In-vivo Measurement of Foot Joints in Children With Haemophilia During Gait.
|
||
| Completed |
NCT02870114 -
National Survey of People With Haemophilia in Portugal
|
N/A | |
| Recruiting |
NCT02197611 -
Development of a Specific Measure for Assessing Adherence in Adult Patients With Hemophilia.
|
N/A | |
| Unknown status |
NCT02582450 -
Validation of a Specific Measure for Assessment of Compliance With Treatment in Patients With Hemophilia
|
N/A | |
| Completed |
NCT05138224 -
Prevalence of Autistic Spectrum Disorder (ASD) in Children With Haemophilia
|
||
| Recruiting |
NCT03287999 -
Inter Individual Variability in Initiation Pathway Activation and Regulation and Phenotypic Heterogeneity in Patients With Haemophilia A and B
|
||
| Completed |
NCT02825667 -
Effectiveness of the Myofascial Therapy in the Hemophilic Arthropathy of Ankle
|
N/A | |
| Completed |
NCT03818529 -
ATHN 8: Previously Untreated Patients (PUPs) Matter Study
|
||
| Completed |
NCT05108480 -
Self-myofascial Release With Foam Roller in Patients With Hemophilic Knee Arthropathy
|
N/A | |
| Completed |
NCT02781233 -
A Progressive Resistance Training Program in Patients With Haemophilia
|
N/A | |
| Active, not recruiting |
NCT02512211 -
Validation of Questionnaires HAL and HEP
|
N/A | |
| Active, not recruiting |
NCT02581735 -
Effectiveness of the uPatient Platform in Prophylactic Treatment in Hemophilia
|
N/A | |
| Not yet recruiting |
NCT01623960 -
Quality of Life in Adult Patients With Severe Haemophilia in Turkey
|
N/A | |
| Completed |
NCT03264014 -
Combining Registry Data in Haemophilia: TARGET H
|
N/A | |
| Recruiting |
NCT02198430 -
Multidisciplinary Evaluation of Patients With Hemophilia
|
N/A | |
| Not yet recruiting |
NCT06046235 -
Virtual Evaluations of Joint Health Using Wearable Sensors in Persons With Haemophilia (VESPA)
|
||
| Completed |
NCT03529474 -
Psychology and Physiotherapy Approach of Chronic Pain in Patients With Hemophilia
|
N/A | |
| Completed |
NCT05425888 -
Functional and Proprioceptive Status in Patients With Hemophilic Ankle Arthropathy
|
||
| Recruiting |
NCT03914209 -
Extended Half-Life (EHL) Clotting Factor for Improving the Musculoskeletal Health of Patients With Hemophilia
|
||
| Completed |
NCT04205188 -
The Effects of Therapeutic Exercises on Kinesiophobia in Haemophilic Patients.
|
N/A |