Effectiveness of Medical Management of Fibrous Dysplasia of Bone. — Efficience

Fibrous Dysplasia of Bone Clinical Trial

Official title:
Effectiveness of Medical Management in the Field of Rare Diseases. The Example of Fibrous Dysplasia of Bone.

Status Completed

Clinical Trial Summary

The objective of our study was to assess the effectiveness of our reference center since its constitution. In a retrospective cohort study, we compared the activity of our center, including the time elapsed between diagnosis and access to the center and the diagnostic delay of patients with fibrous dysplasia between two periods, 1996-2006 (before certification of our center) and 2007-2019 (after certification of our center).

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Clinical Trial Details

NCT number	NCT05422833
Study type	Observational
Source	Hospices Civils de Lyon
Contact
Status	Completed
Phase
Start date	January 1996
Completion date	December 2019

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See also
Status	Clinical Trial	Phase
Completed	`NCT01791842` - TOCILIZUMAB IN FIBROUS DYSPLASIA OF BONE	Phase 2
Completed	`NCT00445575` - Effect of Risedronate on Bone Morbidity in Fibrous Dysplasia of Bone	Phase 2/Phase 3
Recruiting	`NCT06177327` - Hepato-pancreato-biliary Abnormalities in Fibrous Dysplasia of Bone/McCune Albright Syndrome
Recruiting	`NCT03838991` - Epigenetic Regulation in Fibrous Dysplasia of Bone: mirDYS Study.	N/A
Active, not recruiting	`NCT05509595` - Burosumab for Fibroblast Growth Factor-23 Mediated Hypophosphatemia in Fibrous Dysplasia	Phase 2