Depression Clinical Trial
Official title:
Perception of Caregiver Burden
RATIONALE: Gathering information over time about patients' sense of being a burden on their
caregiver, and caregivers' sense of burden on themselves, may help doctors learn more about
the desire to die in patients with late-stage cancer.
PURPOSE: This clinical trial is studying perceptions of burden in patients with late-stage
cancer and their caregivers.
OBJECTIVES:
Primary
- To measure psychosocial correlates of desire for hastened death (DHD) and change in DHD
in patients with late-stage cancer by examining the relationship among a patient's
perception of being a burden, their caregiver's perceptions of the patient's
burdensomeness, and DHD changes over time.
Secondary
- To identify coping and personality factors in both caregivers and patients that may be
related to the patients' DHD and changes in their DHD.
OUTLINE: Patients and caregiver dyads complete questionnaires at baseline, 2 months, and 4
months. The dyads complete demographic questionnaire, the Hospital Anxiety and Depression
Scale (HADS), the Beck Hopelessness Scale (BHS), the Dyadic Adjustment Scale (DAS), and the
Life Orientation Test-Revised (LOT-R). Patients also complete the Schedule of Attitudes
Toward Hastened Death (SAHD), the Brief Coping Orientation to Problems Experienced (Brief
COPE), the Memorial Symptom Assessment Scale-Short Form (MSAS-SF), and the Caregiver Demands
Scale (CDS). Caregivers also complete the Katz Index of Independence in Activities of Daily
Living (IADL).
Patients' medical charts are reviewed for stage and node status at primary diagnosis,
previous oncology surgeries, previous adjuvant treatments, treatment at time of recurrence,
disease free interval, site of metastasis, and response to current treatment.
;
Observational Model: Cohort, Time Perspective: Prospective
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