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Outcomes in CF Patients Accessing Their Registry Health Records — CFView  

Cystic Fibrosis Clinical Trial

Official title:
Evaluating Outcomes in European Cystic Fibrosis Patients With Access to Their Health Records: a Randomised Control Trial of a Registry Patient Portal

Clinical Trial Summary

A multifactorial, parallel group, randomised control study in cystic fibrosis (CF) patients aged 13-30 years over an 18 month period. Patients will be offered read-only access to their CF registry electronic health record (CF View), or educational videos on CF (videos), or videos and CF View, or usual standard of care. The study aims are to examine the effect of patient access to C View on a range of clinical outcomes, health service usage, health literacy and patient reported outcomes.

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT03434886
Study type Interventional
Source Cystic Fibrosis Registry of Ireland
Contact
Status Completed
Phase N/A
Start date March 2016
Completion date September 2017
View Details
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