Congenital Heart Disease Clinical Trial
Official title:
The CHAPTER II Study - Congenital Heart Adolescents Participating in Transition Evaluation Research
Transition is the planned movement of teens with chronic conditions from child-centered to
adult-oriented healthcare. National bodies have published detailed guidelines about the
importance of helping teens move to adult healthcare. However, there is no research regarding
how to best organize and deliver Congenital Heart Disease (CHD) transition programs. Data is
urgently needed. Therefore, the aim of this program is to develop research evidence that will
better prepare health care providers to improve how they can help adolescents with
transition.
This project will determine whether a nurse-led transition intervention program is better at
preparing teens with CHD to independently manage their medical care, compared to the care
that is currently provided. The most important finding of this study will be whether or not
these teens subsequently attend the adult cardiology clinic that specializes in CHD problems,
and the timing of when they attend.
Hypothesis: A transition intervention in combination with usual care, improved time to first
Adult Congenital Heart Disease (ACHD) clinic attendance compared to usual care alone.
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