Clinical Trial Details
— Status: Completed
Administrative data
| NCT number |
NCT05228405 |
| Other study ID # |
KSU5 |
| Secondary ID |
|
| Status |
Completed |
| Phase |
|
| First received |
|
| Last updated |
|
| Start date |
April 15, 2019 |
| Est. completion date |
August 15, 2019 |
Study information
| Verified date |
February 2022 |
| Source |
Kahramanmaras Sutcu Imam University |
| Contact |
n/a |
| Is FDA regulated |
No |
| Health authority |
|
| Study type |
Observational
|
Clinical Trial Summary
Disability-or apology; It is the inability or incompleteness of individuals to fulfill their
roles in life, such as age, gender, culture, social and psychological factors, due to their
inadequacies. Disability is not only a mental or physical health problem, but also a social
problem. Having a disabled child and the type of disability present various difficulties to
parents in the course of life. The difficulties in the care and education of these children
are based on psychological, physical, social, economic and cultural realities.Families with
diseases such as Cerebral Palsy (SP), Spina Bifida (SB), Muscular Dystrophy (MD), Down
Syndrome (DS) are among them. Having a disabled child in the community can affect families in
different ways. Every step of the education of disabled children (purpose, principle,
education plan, game, school and family duties, etc.) is important for the disabled
individual, family, teacher and society.
Description:
Parents spare more time for the care and health of their disabled children, limited time
spent with other family members, families do not have much information about their children's
disabilities after the diagnosis of disability, limited life in children's vision, hearing,
speech, mental and physical activities, functional losses this increases the difficulties.
Self-care problems such as sleeping, eating, drooling, inactivity and dressing skills in
children with CP, difficulties experienced by children with mental disabilities in making
friends and acting independently, problems in going to school, financial losses during the
creation of an environment and environment suitable for their disability, frequently They
face many difficulties such as adaptation problems and behavioral problems, and the
perspective that society has formed against them due to their differences in body
characteristics. As the life span of people with disabilities increases, the financial,
moral, physical and social difficulties of their families increase, and over time,
psychological and behavioral barriers occur in family members. These barriers are increasing
in developing countries. Social support is one of the most important factors that facilitate
successful adaptation to the presence of a child with a disability and reduce the level of
stress they feel in their lives. Social support refers to the help an individual receives
from other people. It can be defined as information that enables a person to have the belief
that they are loved, valued, accepted and part of an interpersonal support network.
Individuals can receive social support from their spouse, family and friends, as well as from
leisure activities, recreational activities, community programs, and professionals and
institutions. Social support or the perception of social support plays an important role in
maintaining the mental health of families. Studies on social support show that as social
support of individuals with disabled children increases, their psychological symptoms,
hopelessness levels, depressive symptoms and stress levels decrease; revealed that their
adjustment and well-being increased. Küçükahmet stated that the institutions in that society
have an impact on the upbringing and development of children in every society and that one of
these institutions is the family.Today, it is known that family-centered approaches are the
most successful in terms of rehabilitation of individuals with disabilities. Because it is
known that the family is of great importance in terms of ensuring the active participation of
the child in life. Therefore, while interdisciplinary treatments continue for the treatment
of individuals, the success of rehabilitation depends on interacting with the family,
identifying and supporting their needs and problems. For this reason, with this study, it is
planned to investigate whether the parents know enough about the physiotherapy program
applied to their children, what level of knowledge they have about their children's disease,
and whether their disabled children participate in sports activities. The aim of this study
is to measure the level of awareness of parents with disabled children about disease,
physiotherapy and sports.
