Caregiver Clinical Trial
Official title:
Perception of Supportive Care Patients and Caregivers Who Are Seen in the Outpatient Supportive/Palliative Care Center Regarding the Preference of Room Setting and Waiting Time
This trial studies the preference of room setting and waiting time in patients with cancer that has spread to nearby tissue or lymph nodes or other places in the body and their caregivers who are seen in the outpatient supportive/palliative care center. Room setting preferences of patients and caregivers may help to understand their opinion regarding direct rooming system in the outpatient supportive/palliative care center.
PRIMARY OBJECTIVES: I. To determine patients and caregivers preferences regarding the rooming process in outpatient supportive palliative care clinic, measured by the preference to exam room versus waiting area. SECONDARY OBJECTIVES: I. Patients and caregiver perceptions regarding room setting and waiting time in the outpatient supportive care clinic. II. Extent/experience of team contact in the outpatient supportive care clinic. III. The factors associated with rooming preferences such as age, gender, symptom distress and performance status. IV. The association between level of distress (physical, psychological, and spiritual distress as measured by Edmonton Symptom Assessment Scale (ESAS) and perception of usefulness of the visit to palliative care center. V. The attitudes and beliefs toward usefulness of referral to outpatient palliative care. VI. The correlation between the patient and caregivers preferences. OUTLINE: Patients and their caregivers complete a questionnaire over 15 minutes either in person or over the phone within 3 days after their supportive care center visit. ;
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