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Clinical Trial Summary

The objective of this study is to collect information on patients with cardiomyopathy (CM) due to mutations in the MYBPC3 gene, to evaluate their disease course, burden of illness, risk factors for this disease, and the quality of life (QoL). This study will also collect information on treatments, procedures and outcome in infants and children up to 18 yrs who have this mutation.


Clinical Trial Description

n/a


Study Design


Related Conditions & MeSH terms


NCT number NCT05112237
Study type Observational
Source Tenaya Therapeutics
Contact Laura Robertson, MD
Phone 650-416-1186
Email lrobertson@tenayathera.com
Status Recruiting
Phase
Start date November 1, 2021
Completion date June 2028

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