Autism Spectrum Disorder Clinical Trial
Official title:
A Service Delivery Model to Better Support Young Adults With Autism Spectrum Disorders in the Transition From School to the Community
This study investigates a service delivery model to better support young adults with autism spectrum disorders (ASD) in the transition from school to the community. The effectiveness of the "McGill Transition Support Program", a small-group format intervention (meeting once a week for 2 hours over 10 weeks) focusing on communication, self-determination and working with others skills, is measured by multiple pre- and post-program-assessments in a "staggered enrollment trial", a variant of a randomized controlled trial (RCT).
The difficulties characterizing Autism Spectrum Disorder (ASD) are often associated with
childhood; however, ASD is a lifespan diagnosis that continues to impact opportunities in
the community. There is currently a very significant gap in support services for young
adults with ASDs that has grave consequences both for individuals and their families in
terms of vocational success and social inclusion and for society as a whole in terms of the
financial burden of long-term adult care.
Individuals on the higher end of the autism spectrum do not have intellectual disability and
possess good language skills. Yet they often show significant difficulty with applying their
skills during demanding social interactions, which is detrimental to their ability to form
relationships and navigate interactions in the workplace. In the few studies of outcomes of
adults with ASD it is reported that fewer than 5% of adults at the highest end of the
spectrum were living independently and only 12% were employed viably. This underscores the
tremendous need for targeted services for young adults with ASD without intellectual
disability.
The McGill Transition Support Program was developed to target participants' self-expressed
needs in communication, self-determination and working with others skills, which have been
associated with better quality of life. Besides the intake, pre- and post-program measures
sessions, the participants, aged 18 - 30 years, take part in ten 2-hour group meetings. The
study design has been termed a "staggered enrollment trial", that is participants were
randomly assigned to take part in the program in the next available cycle or to the waiting
list for a subsequent cycle. Pre- and post-program assessment include social problem solving
stories, quality of life and self-determination measures, a communication task and a needs
and skills questionnaire.
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