Quality of Life — Quality of Life for Carers Through a Person-Centred Technological Solution
Citation(s)
Bretones FD, Jáimez MJ Spanish adaptation and validation of the Psychological Empowerment Scale. Interdisciplinaria. 2022; 39(1): 195-210. https://doi.org/10.16888/INTERD.2022.39.1.12
Brouwer WB, van Exel NJ, van Gorp B, Redekop WK The CarerQol instrument: a new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations. Qual Life Res. 2006 Aug;15(6):1005-21. doi: 10.1007/s11136-005-5994-6.
EuroQol Research Foundation EQ-5D-5L User Guide Basic information on how to use the EQ-5D-5L instrument. 2019. https://euroqol.org/publications/user-guides/
López AS, Moral SM Validación del Índice de Esfuerzo del Cuidador en la población española [Validation of the Caregiver Strain Index in Spanish population]. Enferm Comunitaria. 2005; 1(1): 12-17.
Njoroge J, Norman A, Reed D, Suh I Identifying Facets of Technology Satisfaction: Measure Development and Application. J Learn High Educ. 2012; 1(2): 7-17. https://eric.ed.gov/?id=EJ1145014
Robinson BC Validation of a Caregiver Strain Index. J Gerontol. 1983 May;38(3):344-8. doi: 10.1093/geronj/38.3.344.
Spanish Ministry of Health Spanish National Health Survey 2011/2012. 2012. https://www.sanidad.gob.es/estadEstudios/estadisticas/encuestaNacional/encuesta2011.htm
Spreitzer GM Psycological, Empowerment in the Workplace: Dimensions, Measurement and Validation. Acad Manag J. 1995; 38(5): 1442-1465. https://doi.org/10.2307/256865
Spreitzer GM Social structural characteristics of psychological empowerment. Acad Manag J. 1996; 39(2): 483-504. https://doi.org/10.2307/256789
Wagman P, Hakansson C Exploring occupational balance in adults in Sweden. Scand J Occup Ther. 2014 Nov;21(6):415-20. doi: 10.3109/11038128.2014.934917. Epub 2014 Aug 6.
Xiaomi Xiaomi Smart Band 7. 2023a. https://www.mi.com/es/product/xiaomi-smart-band-7/
Xiaomi Xiaomi Smart Band 8. 2023b. https://www.mi.com/es/product/xiaomi-smart-band-8/
Zarit SH, Anthony CR, Boutselis M Interventions with care givers of dementia patients: comparison of two approaches. Psychol Aging. 1987 Sep;2(3):225-32. doi: 10.1037//0882-7974.2.3.225.
Zarit SH, Reever KE, Bach-Peterson J Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist. 1980 Dec;20(6):649-55. doi: 10.1093/geront/20.6.649. No abstract available.
Quality of Life for Carers Through a Person-Centred Technological Solution
Interventional studies are often prospective and are specifically tailored to evaluate direct impacts of treatment or preventive measures on disease.
Observational studies are often retrospective and are used to assess potential causation in exposure-outcome relationships and therefore influence preventive methods.
Expanded access is a means by which manufacturers make investigational new drugs available, under certain circumstances, to treat a patient(s) with a serious disease or condition who cannot participate in a controlled clinical trial.
Clinical trials are conducted in a series of steps, called phases - each phase is designed to answer a separate research question.
Phase 1: Researchers test a new drug or treatment in a small group of people for the first time to evaluate its safety, determine a safe dosage range, and identify side effects.
Phase 2: The drug or treatment is given to a larger group of people to see if it is effective and to further evaluate its safety.
Phase 3: The drug or treatment is given to large groups of people to confirm its effectiveness, monitor side effects, compare it to commonly used treatments, and collect information that will allow the drug or treatment to be used safely.
Phase 4: Studies are done after the drug or treatment has been marketed to gather information on the drug's effect in various populations and any side effects associated with long-term use.