Parkinson Disease — Managing Fatigue in People With Parkinson's Disease
Citation(s)
Amara AW, Memon AA Effects of Exercise on Non-motor Symptoms in Parkinson's Disease. Clin Ther. 2018 Jan;40(1):8-15. doi: 10.1016/j.clinthera.2017.11.004. Epub 2017 Dec 1.
Bandura A Self-efficacy: toward a unifying theory of behavioral change. Psychol Rev. 1977 Mar;84(2):191-215. doi: 10.1037//0033-295x.84.2.191. No abstract available.
Beiske AG, Svensson E Fatigue in Parkinson's disease: a short update. Acta Neurol Scand Suppl. 2010;(190):78-81. doi: 10.1111/j.1600-0404.2010.01381.x.
Blikman LJ, Huisstede BM, Kooijmans H, Stam HJ, Bussmann JB, van Meeteren J Effectiveness of energy conservation treatment in reducing fatigue in multiple sclerosis: a systematic review and meta-analysis. Arch Phys Med Rehabil. 2013 Jul;94(7):1360-76. doi: 10.1016/j.apmr.2013.01.025. Epub 2013 Feb 8.
Chaudhuri A, Behan PO Fatigue in neurological disorders. Lancet. 2004 Mar 20;363(9413):978-88. doi: 10.1016/S0140-6736(04)15794-2.
Corzillius M, Fortin P, Stucki G Responsiveness and sensitivity to change of SLE disease activity measures. Lupus. 1999;8(8):655-9. doi: 10.1191/096120399680411416.
Dedding C, Cardol M, Eyssen IC, Dekker J, Beelen A Validity of the Canadian Occupational Performance Measure: a client-centred outcome measurement. Clin Rehabil. 2004 Sep;18(6):660-7. doi: 10.1191/0269215504cr746oa.
Elbers RG, Berendse HW, Kwakkel G Treatment of Fatigue in Parkinson Disease. JAMA. 2016 Jun 7;315(21):2340-1. doi: 10.1001/jama.2016.5260.
Elbers RG, van Wegen EE, Verhoef J, Kwakkel G Impact of fatigue on health-related quality of life in patients with Parkinson's disease: a prospective study. Clin Rehabil. 2014 Mar;28(3):300-11. doi: 10.1177/0269215513503355. Epub 2013 Oct 10.
Elbers RG, van Wegen EE, Verhoef J, Kwakkel G Reliability and structural validity of the Multidimensional Fatigue Inventory (MFI) in patients with idiopathic Parkinson's disease. Parkinsonism Relat Disord. 2012 Jun;18(5):532-6. doi: 10.1016/j.parkreldis.2012.01.024. Epub 2012 Feb 22.
Fetters MD, Curry LA, Creswell JW Achieving integration in mixed methods designs-principles and practices. Health Serv Res. 2013 Dec;48(6 Pt 2):2134-56. doi: 10.1111/1475-6773.12117. Epub 2013 Oct 23.
Finlayson M, Preissner K, Cho C, Plow M Randomized trial of a teleconference-delivered fatigue management program for people with multiple sclerosis. Mult Scler. 2011 Sep;17(9):1130-40. doi: 10.1177/1352458511404272. Epub 2011 May 11.
Foster ER, Golden L, Duncan RP, Earhart GM Community-based Argentine tango dance program is associated with increased activity participation among individuals with Parkinson's disease. Arch Phys Med Rehabil. 2013 Feb;94(2):240-9. doi: 10.1016/j.apmr.2012.07.028. Epub 2012 Aug 15.
Franchignoni F, Giordano A, Ferriero G Rasch analysis of the short form 8-item Parkinson's Disease Questionnaire (PDQ-8). Qual Life Res. 2008 May;17(4):541-8. doi: 10.1007/s11136-008-9341-6.
Franssen M, Winward C, Collett J, Wade D, Dawes H Interventions for fatigue in Parkinson's disease: A systematic review and meta-analysis. Mov Disord. 2014 Nov;29(13):1675-8. doi: 10.1002/mds.26030. Epub 2014 Sep 18.
Friedman JH, Abrantes A, Sweet LH Fatigue in Parkinson's disease. Expert Opin Pharmacother. 2011 Sep;12(13):1999-2007. doi: 10.1517/14656566.2011.587120. Epub 2011 Jun 3.
Ghahari S, Leigh Packer T, Passmore AE Effectiveness of an online fatigue self-management programme for people with chronic neurological conditions: a randomized controlled trial. Clin Rehabil. 2010 Aug;24(8):727-44. doi: 10.1177/0269215509360648. Epub 2010 Jun 11.
Ghahari S, Packer TL, Passmore AE Development, standardisation and pilot testing of an online fatigue self-management program. Disabil Rehabil. 2009;31(21):1762-72. doi: 10.1080/09638280902751956.
Goodwin VA, Richards SH, Taylor RS, Taylor AH, Campbell JL The effectiveness of exercise interventions for people with Parkinson's disease: a systematic review and meta-analysis. Mov Disord. 2008 Apr 15;23(5):631-40. doi: 10.1002/mds.21922.
Hakansson C, Wagman P, Hagell P Construct validity of a revised version of the Occupational Balance Questionnaire. Scand J Occup Ther. 2020 Aug;27(6):441-449. doi: 10.1080/11038128.2019.1660801. Epub 2019 Sep 14.
Herlofson K, Larsen JP The influence of fatigue on health-related quality of life in patients with Parkinson's disease. Acta Neurol Scand. 2003 Jan;107(1):1-6. doi: 10.1034/j.1600-0404.2003.02033.x.
Kluger BM Fatigue in Parkinson's Disease. Int Rev Neurobiol. 2017;133:743-768. doi: 10.1016/bs.irn.2017.05.007. Epub 2017 Jun 20.
Kos D, Duportail M, D'hooghe M, Nagels G, Kerckhofs E Multidisciplinary fatigue management programme in multiple sclerosis: a randomized clinical trial. Mult Scler. 2007 Sep;13(8):996-1003. doi: 10.1177/1352458507078392. Epub 2007 Jul 10.
Krupp LB, LaRocca NG, Muir-Nash J, Steinberg AD The fatigue severity scale. Application to patients with multiple sclerosis and systemic lupus erythematosus. Arch Neurol. 1989 Oct;46(10):1121-3. doi: 10.1001/archneur.1989.00520460115022.
Packer TL, Brink N, Sauriol A Managing Fatigue: A six-week course for energy conservation. Therapy Skill Builders: Tucson, Ariz. 1995
van den Akker LE, Beckerman H, Collette EH, Eijssen IC, Dekker J, de Groot V Effectiveness of cognitive behavioral therapy for the treatment of fatigue in patients with multiple sclerosis: A systematic review and meta-analysis. J Psychosom Res. 2016 Nov;90:33-42. doi: 10.1016/j.jpsychores.2016.09.002. Epub 2016 Sep 7.
Van Heest KNL, Mogush AR, Mathiowetz VG Effects of a One-to-One Fatigue Management Course for People With Chronic Conditions and Fatigue. Am J Occup Ther. 2017 Jul/Aug;71(4):7104100020p1-7104100020p9. doi: 10.5014/ajot.2017.023440.
Vanage SM, Gilbertson KK, Mathiowetz V Effects of an energy conservation course on fatigue impact for persons with progressive multiple sclerosis. Am J Occup Ther. 2003 May-Jun;57(3):315-23. doi: 10.5014/ajot.57.3.315.
Wagman P, Hakansson C Introducing the Occupational Balance Questionnaire (OBQ). Scand J Occup Ther. 2014 May;21(3):227-31. doi: 10.3109/11038128.2014.900571. Epub 2014 Mar 21.
Interventional studies are often prospective and are specifically tailored to evaluate direct impacts of treatment or preventive measures on disease.
Observational studies are often retrospective and are used to assess potential causation in exposure-outcome relationships and therefore influence preventive methods.
Expanded access is a means by which manufacturers make investigational new drugs available, under certain circumstances, to treat a patient(s) with a serious disease or condition who cannot participate in a controlled clinical trial.
Clinical trials are conducted in a series of steps, called phases - each phase is designed to answer a separate research question.
Phase 1: Researchers test a new drug or treatment in a small group of people for the first time to evaluate its safety, determine a safe dosage range, and identify side effects.
Phase 2: The drug or treatment is given to a larger group of people to see if it is effective and to further evaluate its safety.
Phase 3: The drug or treatment is given to large groups of people to confirm its effectiveness, monitor side effects, compare it to commonly used treatments, and collect information that will allow the drug or treatment to be used safely.
Phase 4: Studies are done after the drug or treatment has been marketed to gather information on the drug's effect in various populations and any side effects associated with long-term use.