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Citation(s)

  •   Dwyer AA, Uveges M, Dockray S, Smith N
    Advancing qualitative rare disease research methodology: a comparison of virtual and in-person focus group formats. Orphanet J Rare Dis. 2022 Sep 11;17(1):354. doi: 10.1186/s13023-022-02522-3.
  •   Dwyer AA, Uveges MK, Dockray S, Smith N
    Exploring Rare Disease Patient Attitudes and Beliefs regarding Genetic Testing: Implications for Person-Centered Care. J Pers Med. 2022 Mar 16;12(3):477. doi: 10.3390/jpm12030477.
  •   Dwyer AA, Zeng Z, Lee CS
    Validating online approaches for rare disease research using latent class mixture modeling. Orphanet J Rare Dis. 2021 May 10;16(1):209. doi: 10.1186/s13023-021-01827-z.

Patient and Healthcare Professional Views on Genetic/Genomic Information and Testing

Details for clinical trial NCT04733274