Berger BE, Ferrans CE, Lashley FR Measuring stigma in people with HIV: psychometric assessment of the HIV stigma scale. Res Nurs Health. 2001 Dec;24(6):518-29.
Boyd JE, Adler EP, Otilingam PG, Peters T Internalized Stigma of Mental Illness (ISMI) scale: a multinational review. Compr Psychiatry. 2014 Jan;55(1):221-31. doi: 10.1016/j.comppsych.2013.06.005. Epub 2013 Sep 21. Review.
Broom D, Whittaker A Controlling diabetes, controlling diabetics: moral language in the management of diabetes type 2. Soc Sci Med. 2004 Jun;58(11):2371-82.
Browne JL, Ventura A, Mosely K, Speight J 'I call it the blame and shame disease': a qualitative study about perceptions of social stigma surrounding type 2 diabetes. BMJ Open. 2013 Nov 18;3(11):e003384. doi: 10.1136/bmjopen-2013-003384.
Browne JL, Ventura A, Mosely K, Speight J 'I'm not a druggie, I'm just a diabetic': a qualitative study of stigma from the perspective of adults with type 1 diabetes. BMJ Open. 2014 Jul 23;4(7):e005625. doi: 10.1136/bmjopen-2014-005625.
Centers for Disease Control and Prevention National Diabetes Statistics Report: Estimates of Diabetes and Its Burden in the United States, 2014. Atlanta: U.S. Department of Health and Human Services, 2014.
Corrigan PW, Watson AC The paradox of self-stigma and mental illness. Clin Psychol. 2002;9:35-53
Earnshaw VA, Quinn DM The impact of stigma in healthcare on people living with chronic illnesses. J Health Psychol. 2012 Mar;17(2):157-68. doi: 10.1177/1359105311414952. Epub 2011 Jul 28.
Egede LE, Gebregziabher M, Echols C, Lynch CP Longitudinal effects of medication nonadherence on glycemic control. Ann Pharmacother. 2014 May;48(5):562-70. doi: 10.1177/1060028014526362. Epub 2014 Feb 28.
Goldman JB, Maclean HM The significance of identity in the adjustment to diabetes among insulin users. Diabetes Educ. 1998 Nov-Dec;24(6):741-8.
Hopper S Diabetes as a stigmatized condition: the case of low-income clinic patients in the United States. Soc Sci Med Med Anthropol. 1981 Jan;15B(1):11-9.
Joachim G, Acorn S Stigma of visible and invisible chronic conditions. J Adv Nurs. 2000 Jul;32(1):243-8.
Kato A, Takada M, Hashimoto H Reliability and validity of the Japanese version of the self-stigma scale in patients with type 2 diabetes. Health Qual Life Outcomes. 2014 Dec 12;12:179. doi: 10.1186/s12955-014-0179-z.
Kumar K, Greenfield S, Raza K, Gill P, Stack R Understanding adherence-related beliefs about medicine amongst patients of South Asian origin with diabetes and cardiovascular disease patients: a qualitative synthesis. BMC Endocr Disord. 2016 May 26;16(1):24. doi: 10.1186/s12902-016-0103-0.
Laws MB Explanatory Models and Illness Experience of People Living with HIV. AIDS Behav. 2016 Sep;20(9):2119-29. doi: 10.1007/s10461-016-1358-1.
Lee S, Lee MT, Chiu MY, Kleinman A Experience of social stigma by people with schizophrenia in Hong Kong. Br J Psychiatry. 2005 Feb;186:153-7.
Lick DJ, Durso LE, Johnson KL Minority Stress and Physical Health Among Sexual Minorities. Perspect Psychol Sci. 2013 Sep;8(5):521-48. doi: 10.1177/1745691613497965.
Lillis J, Luoma JB, Levin ME, Hayes SC Measuring weight self-stigma: the weight self-stigma questionnaire. Obesity (Silver Spring). 2010 May;18(5):971-6. doi: 10.1038/oby.2009.353. Epub 2009 Oct 15.
Link BG, Phelan JC Conceptualizing stigma. Annu Rev Sociol. 2001;27:363-85.
Mayberry LS, Gonzalez JS, Wallston KA, Kripalani S, Osborn CY The ARMS-D out performs the SDSCA, but both are reliable, valid, and predict glycemic control. Diabetes Res Clin Pract. 2013 Nov;102(2):96-104. doi: 10.1016/j.diabres.2013.09.010. Epub 2013 Sep 26.
Meyer IH Prejudice, social stress, and mental health in lesbian, gay, and bisexual populations: conceptual issues and research evidence. Psychol Bull. 2003 Sep;129(5):674-97. Review.
Mirowsky J, Ross CE Social Causes of Psychological Distress. NY: Aldine de Gruyter; 1989.
Scambler G, Hopkins A Being epileptic: Coming to terms with stigma. Sociol Health Illn. 1986;8:26-43.
Schabert J, Browne JL, Mosely K, Speight J Social stigma in diabetes : a framework to understand a growing problem for an increasing epidemic. Patient. 2013;6(1):1-10. doi: 10.1007/s40271-012-0001-0. Review.
Stolar M Glycemic control and complications in type 2 diabetes mellitus. Am J Med. 2010 Mar;123(3 Suppl):S3-11. doi: 10.1016/j.amjmed.2009.12.004. Review.
Tak-Ying Shiu A, Kwan JJ, Wong RY Social stigma as a barrier to diabetes self-management: implications for multi-level interventions. J Clin Nurs. 2003 Jan;12(1):149-50.
Woo BK, Mehta P Examining the differences in the stigma of dementia and diabetes among Chinese Americans. Geriatr Gerontol Int. 2017 May;17(5):760-764. doi: 10.1111/ggi.12782. Epub 2016 May 2.
Interventional studies are often prospective and are specifically tailored to evaluate direct impacts of treatment or preventive measures on disease.
Observational studies are often retrospective and are used to assess potential causation in exposure-outcome relationships and therefore influence preventive methods.
Expanded access is a means by which manufacturers make investigational new drugs available, under certain circumstances, to treat a patient(s) with a serious disease or condition who cannot participate in a controlled clinical trial.
Clinical trials are conducted in a series of steps, called phases - each phase is designed to answer a separate research question.
Phase 1: Researchers test a new drug or treatment in a small group of people for the first time to evaluate its safety, determine a safe dosage range, and identify side effects.
Phase 2: The drug or treatment is given to a larger group of people to see if it is effective and to further evaluate its safety.
Phase 3: The drug or treatment is given to large groups of people to confirm its effectiveness, monitor side effects, compare it to commonly used treatments, and collect information that will allow the drug or treatment to be used safely.
Phase 4: Studies are done after the drug or treatment has been marketed to gather information on the drug's effect in various populations and any side effects associated with long-term use.