Xeroderma Pigmentosum Patient Experiences

Status Unknown status

Clinical Trial Summary

Xeroderma Pigmentosum (XP) is a rare skin condition that causes extreme sensitivity to the sun and an increased incidence of skin cancers. The purpose of this study is to find out more about XP patient experiences and their quality of life.

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Clinical Trial Details

NCT number	NCT01123694
Study type	Observational
Source	Henry Ford Health System
Contact	Danielle M Hawkins, B.S.
Phone	248-535-8322
Email	hawki105@msu.edu
Status	Unknown status
Phase	N/A
Start date	July 2009
Completion date	July 2010

View Details

See also
Status	Clinical Trial	Phase
Completed	`NCT00555633` - Use of an SPF30 Sunscreen and an After-sun-lotion in Skin Cancer Risk Patients	N/A
Recruiting	`NCT05159752` - A Study to Evaluate the Safety and Efficacy of Afamelanotide in Patients With Xeroderma Pigmentosum (XP)	Phase 2
Recruiting	`NCT05484570` - Natural History Study for DNA Repair Disorders
Active, not recruiting	`NCT00001813` - Examination of Clinical and Laboratory Abnormalities in Patients With Defective DNA Repair: Xeroderma Pigmentosum, Cockayne Syndrome, or Trichothiodystrophy
Completed	`NCT03445052` - XPAND Trial: Enhancing XP Photoprotection Activities - New Directions	N/A
Recruiting	`NCT05370235` - A Study to Evaluate the Safety and Efficacy of Afamelanotide in Patients With Xeroderma Pigmentosum C and V	Phase 2
Withdrawn	`NCT04500548` - Testing the Combination of Two Immunotherapy Drugs (Nivolumab and Ipilimumab) in Children, Adolescent, and Young Adult Patients With Relapsed/Refractory Cancers That Have an Increased Number of Genetic Changes, The 3CI Study	Phase 1
Enrolling by invitation	`NCT06330324` - Reproductive Options in Inherited Skin Diseases
Completed	`NCT00046189` - Cancer Risk in Carriers of the Gene for Xeroderma Pigmentosum