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SDHB Gene Mutation clinical trials

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NCT ID: NCT03749980 Recruiting - Clinical trials for Von Hippel-Lindau Disease

MyVHL: Patient Natural History Study

MyVHL
Start date: January 2012
Phase:
Study type: Observational [Patient Registry]

MyVHL is a multi-patient database which helps researchers identify patterns across VHL patients. MyVHL provides you -and researchers -with more complete information about VHL, like how your lifestyle, medications, and other factors impact the disease and quality of life. These insights help you better understand the condition and help researchers know where to focus their efforts. Due to its rarity, there is less understanding of VHL and the factors that may have an impact. The data individuals provide in MyVHL helps researchers identify and uncover factors that may increase risk, inhibit or slow tumor growth, or lead to an effective cure.