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Oral Health Related Quality of Life of Patients With Rare Diseases: a Qualitative Approach — RaroDentAXE3  

Rare Diseases Clinical Trial

Official title:
Oral Health Related Quality of Life of Patients With Rare Diseases Followed at Necker Hospital: a Qualitative Approach

Clinical Trial Summary

The main objective of the study is to assess the oral health-related quality of life of patients with rare diseases and followed in the rare disease centers of expertise at Necker Hospital in Paris by semi-structured interviews.

Clinical Trial Description

To date, few studies have used the qualitative method to analyze the oral health-related quality of life and the oral health care pathways of patients with rare diseases, all health sectors combined. The quantitative studies carried out using standardized questionnaires offer only a partial view of how patients feel, both children and adults. The main objective of the study is to assess the oral health-related quality of life of patients with rare diseases and followed in the rare disease centers of expertise at Necker Hospital in Paris by means of a semi-structured interview. ;

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT05070988
Study type Observational
Source Assistance Publique - Hôpitaux de Paris
Contact
Status Completed
Phase
Start date October 20, 2021
Completion date November 29, 2021
View Details
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