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Phenylketonurias clinical trials

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NCT ID: NCT04086511 Completed - Clinical trials for Phenylketonuria (PKU)

PANDA: PKU Amino Acid Evaluation

PANDA
Start date: September 10, 2019
Phase:
Study type: Observational

Phenylketonuria (PKU) is a rare inherited metabolic disorder, where subjects are born with a genetic deficiency in the phenylalanine hydroxylase enzyme (PAH), which leaves them unable to convert Phenylalanine (Phe) into Tyrosine (Tyr). PKU patients have specific dietary needs and must follow a restrictive diet in the aim of preventing toxic levels of the amino acid phenylalanine (Phe) accumulation.

NCT ID: NCT04085666 Completed - Phenylketonuria Clinical Trials

Pharmacodynamics, Safety, Tolerability and Pharmacokinetics of CDX-6114 in Patients With Phenylketonuria (PKU)

Start date: June 1, 2019
Phase: Phase 1
Study type: Interventional

This study is an international, multi-center, randomized, double-blind, placebo-controlled, two-treatment, two-period cross-over study to evaluate the pharmacodynamics, safety, tolerability and pharmacokinetics of a single oral dose of CDX-6114 in patients with phenylketonuria (PKU).

NCT ID: NCT04076176 Completed - Phenylketonurias Clinical Trials

The Effects of CGMP in Children and Adults With PKU

ELEMENT
Start date: April 26, 2019
Phase: N/A
Study type: Interventional

Randomised controlled trial with a crossover design. For early and continuously treated patients with phenylketonuria (PKU) that are adherent. Two 12-week periods where patients consume either casein glycomacropeptide (CGMP) based protein substitute or a free amino acid (AA) based protein substitute. 4 week wash out period in between. The protein substitutes will be consumed daily together with the patient's regular low protein diet.

NCT ID: NCT04014712 Withdrawn - COPD Clinical Trials

O2 Transport and Utilization in Health and Lung Disease

Start date: April 2021
Phase: Phase 1
Study type: Interventional

Skeletal muscle dysfunction is a frequent and clinically relevant systemic manifestation of Chronic Pulmonary Obstructive Disease (COPD), which is still poorly understood. Therefore, the focus of this study is on the role of a deficit in tetrahydrobiopterin and nitric oxide synthase uncoupling induced by chronic oxidative stress on metabolic and vascular abnormalities in skeletal muscle of patients suffering from COPD.

NCT ID: NCT03952156 Terminated - Phenylketonurias Clinical Trials

Gene Therapy Clinical Study in Adult PKU

pheNIX
Start date: June 10, 2019
Phase: Phase 1/Phase 2
Study type: Interventional

This is a Phase 1/2, open-label, randomized, concurrently-controlled, dose escalation study to evaluate the safety and efficacy of HMI-102 in adult PKU subjects with PAH deficiency. Participants will receive a single administration of HMI-102 and will be followed for safety and efficacy for 1 year.

NCT ID: NCT03939052 Recruiting - Phenylketonuria Clinical Trials

Protein Requirements in Adults With Phenylketonuria (PKU)

Start date: July 19, 2019
Phase: N/A
Study type: Interventional

Phenylketonuria (PKU) is an inherited inborn error of phenylalanine (PHE) metabolism caused by decreased activity of phenylalanine hydroxylase (PAH) enzyme. Therefore, PHE accumulates in plasma leading to mental problems. Treatment is a phenylalanine-restricted diet with sufficient protein. However, the optimum protein requirements are still unknown and compliance with diet is not satisfactory in PKU adults. A Previously established technique called indicator amino acid oxidation (IAAO) will be used to determine protein requirements from amino acid based formula vs. glycomacropeptide (GMP) in adults with PKU (≥ 19y). This study will help treat adults with enough protein ensuring maintenance of health.

NCT ID: NCT03924180 Completed - Clinical trials for Adult Phenylketonuria Non Treated Patients

Glytactin EfficiEncy in Non or Insufficiently Treated Adult PHENylketonuria Patients

GLEEPHEN
Start date: September 19, 2019
Phase: N/A
Study type: Interventional

Phenylketonuria is the most common inherited metabolic disease in France and is screened for neonatal exposure. Management consists of a strict and restrictive hypoproteic diet and the intake of amino acid substitutes and dietary supplements free of phenylalanine.One of the major difficulties, which is the source of many treatment failures, is the inappetence of the amino acid supplements required during a strict hypoproteic diet. New formulations, Glycomacropeptides (GMP), have recently appeared and are considered more palatable than conventional amino acid mixtures.

NCT ID: NCT03864029 Completed - Clinical trials for Tetrahydrobiopterin Deficiency

Retrospective Observational Safety Effectiveness With Kuvan in hpA

ROSEKA
Start date: October 10, 2017
Phase:
Study type: Observational

A retrospective study to collect the effectiveness and safety data of the past treatment with KUVAN in Chinese patients with HPA caused by BH4 deficiency. The data was collected from relevant past medical history and past clinical and safety assessments.

NCT ID: NCT03858101 Completed - Phenylketonuria Clinical Trials

SNAP: Study Nutrients in Adult PKU

SNAP
Start date: April 15, 2019
Phase:
Study type: Observational

Phenylketonuria (PKU) is a rare inherited metabolic disorder, where subjects are born with a genetic deficiency in the phenylalanine hydroxylase enzyme (PAH), which leaves them unable to convert Phenylalanine (Phe) into Tyrosine (Tyr). PKU patients have specific dietary needs and must follow a restrictive diet in the aim of preventing toxic levels of the amino acid phenylalanine (Phe) accumulation.

NCT ID: NCT03856203 Completed - Phenylketonurias Clinical Trials

Nutrition Status of Adults With PKU Before and During Treatment With Pegvaliase

Start date: March 8, 2019
Phase:
Study type: Observational

Conduct a prospective, longitudinal study to evaluate nutritional status in adults with phenylketonuria (PKU) before and during treatment with pegvaliase (Palynziq™).