The Right to be Forgotten in the AYA Population: Patients' Experience and Perspectives (Diritto All'Oblio)

Oncologic Disorders Clinical Trial

Official title: The Right to be Forgotten in the AYA Population: Patients' Experience and Perspectives (Diritto All'Oblio)

Status Recruiting

Clinical Trial Summary

Cancer survivors experience a form of social discrimination that is described in numerous areas such as private life, educational and work paths and the achievement of personal goals. Starting from this scenario, more and more national legislative initiatives are emerging to reconcognize the right to be forgotten, defined as the right not to have to report one's, resolved, oncological disease in contact with institutions such as insurance companies, banks or others. The issue of the right to be forgotten is current and new, primarily in the AYA (adolescents and young adults) population. The purpose of this study is to explore and describe the experience of adolescents and young adults affected by previous oncological disease with respect to the issue of the right to be forgotten. In particular, focusing on:

• awareness (knowledge of the issue);

• significance attributed and subjective perception;

• implications/fallouts perceived or experienced on one's present and future history.

Clinical Trial Description

Cancer survivors experience a form of social discrimination that is described in numerous areas such as private life, educational and work paths and the achievement of personal goals. Starting from this scenario, more and more national legislative initiatives are emerging to reconcognize the right to be forgotten, defined as the right not to have to report one's, resolved, oncological disease in contact with institutions such as insurance companies, banks or others. The issue of the right to be forgotten is current and new, primarily in the AYA (adolescents and young adults) population. The purpose of this study is to explore and describe the experience of adolescents and young adults affected by previous oncological disease with respect to the issue of the right to be forgotten. In particular, focusing on:

• awareness (knowledge of the issue);

• significance attributed and subjective perception;

• implications/fallouts perceived or experienced on one's present and future history. ;

Related Conditions & MeSH terms

• Oncologic Disorders

• NCT number: NCT06229535
• Study type: Observational
• Source: Centro di Riferimento Oncologico - Aviano
• Contact: Maurizio Mascarin, MD
• Phone: 0434 659 536
• Email: mascarin@cro.it
• Status: Recruiting
• Start date: November 16, 2023
• Completion date: November 16, 2024