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Clinical Trial Summary

The Bronchiectasis Research Registry is a consolidated database of non-cystic fibrosis (non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) patients from multiple clinical institutions.


Clinical Trial Description

The Bronchiectasis Research Registry is a consolidated database of non-cystic fibrosis (non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) patients from multiple clinical institutions. The goal of the Bronchiectasis Research Registry is to support collaborative research and assist in the planning of multi-center clinical trials for the treatment of NTM and non-CF Bronchiectasis, a progressive, non-curable disease of the lungs, which afflicts thousands of patients. The Registry will also be used to provide better insight into the study of the different types of Bronchiectasis, as well as the pathophysiology of the disorder. In 2012, in collaboration with NTM Info and Research, Inc (NTMir) and the consortium members, the COPD Foundation expanded the Bronchiectasis Research Registry to enroll patients with "non tuberculous mycobacteria (NTM) only". Prior to this time, the registry included individuals with Bronchiectasis, with or without NTM. ;


Study Design


Related Conditions & MeSH terms


NCT number NCT01822834
Study type Observational [Patient Registry]
Source COPD Foundation
Contact Delia Prieto
Phone 1-866-731-2673
Status Recruiting
Phase
Start date January 2008
Completion date December 2050

See also
  Status Clinical Trial Phase
Recruiting NCT04793867 - Regional Phenotyping of CF and Non-CF Bronchiectasis
Completed NCT02657473 - Inhaled Nebulized Tobramycin in Non-cystic Fibrosis Bronchiectasis Phase 2/Phase 3