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Muscular Dystrophy, Duchenne clinical trials

View clinical trials related to Muscular Dystrophy, Duchenne.

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NCT ID: NCT06412328 Completed - Clinical trials for Duchenne Muscular Dystrophy

Psychoeducation Program for Parents of Children With DMD

Start date: June 21, 2023
Phase: N/A
Study type: Interventional

Having and caring for a child with disabilities brings emotional, social and economic difficulties for many families. Families may experience many physiological and psychological problems due to the stress and anxiety they experience. In addition, it is seen that families with children with disabilities give up their existing roles, reduce their participation in social activities, and reach stagnation in their social lives. Mothers are affected psychologically more than fathers and feel lonely. It is stated that mothers believe that they cannot afford everything in the face of the responsibilities they carry and accordingly, they experience emotional and psychological problems such as stress, anxiety, depression, absent-mindedness, forgetfulness and tantrums. Living with a child with a disability causes family members to experience different emotions as mentioned above; families may frequently experience fear, anxiety, guilt, anger and depression. It is reported that mothers of children with DMD experience depression, anxiety about the future and uncertainty more than mothers of healthy children. Families of children with DMD reported that they felt tired and fatigued during the process of caring for the child and had difficulties in participating in social activities and allocating time for themselves. Most of these families stated that they needed psychological and social support. Therefore, it is important to address the psychiatric aspects of families with children with DMD during the disease process. Parental health contributes positively to the health and adaptation of the family in general. Examining the psychiatric symptoms caused by the problems experienced by families related to DMD and how they cope with this stress will be useful in evaluating and addressing these families. In addition, the social support that families with children with disabilities receive from their immediate environment and institutions is also an important issue. It has been reported that social support from relatives, friends, neighbors, organizations and communities increases the psychological resilience levels of families, they feel that they are not alone in the face of problems, and their anxiety levels decrease. In the literature, it is generally mentioned that when the culture of pediatric care is supportive and family-oriented, the care of the patient will undergo a change when transitioning from pediatric care to the adult period. However, studies evaluating the problems experienced by families in the care of patients with DMD, psychiatric symptoms, ways of coping with stress and perceived social support are insufficient. It is important to evaluate the problems experienced by parents in the families of children with DMD in developing skills to cope with the disease process and disease-related problems, and then to provide training in these areas. Because if parents, who are in the role of caregivers, are equipped with knowledge and skills in this context, they will provide better care and be more useful to their children with DMD. In line with this information, the aim of this study was to evaluate the problems experienced by parents of children with DMD, psychiatric symptoms, coping skills with stress and the level of social support they perceive and to implement a psychosocial support-based psychoeducation program related to these areas.

NCT ID: NCT06379906 Completed - Clinical trials for Duchenne Muscular Dystrophy

Upper Extremity Muscle Strength, Balance and Functional Skills in DMD

Start date: November 10, 2023
Phase:
Study type: Observational [Patient Registry]

This study aims to examine the relationship between upper extremity muscle strength, balance and functional skills of children with DMD.

NCT ID: NCT06304064 Completed - Clinical trials for Duchenne Muscular Dystrophy

Halt cardiomyOPathy progrEssion in Duchenne (HOPE-OLE)

HOPE-OLE
Start date: June 21, 2018
Phase: Phase 2
Study type: Interventional

This Phase 2, multi-center, open-label extension trial will provide CAP-1002 to participants who were randomized to the Usual Care treatment group of the HOPE-Duchenne study (NCT02485938) and completed 12 months of follow-up. The trial will assess the safety and efficacy of two intravenous administrations of CAP-1002, each separated by three months.

NCT ID: NCT06186310 Completed - Clinical trials for Duchenne or Becker Muscular Dystrophy

Effectiveness of Aquatic Therapy in Children With Duchenne and Becker Muscular Dystrophy

Start date: November 5, 2023
Phase: N/A
Study type: Interventional

The purpose of this study is ; to evaluate the effects of aquatic therapy applied in addition to conventional physical therapy on balance, functionality and quality of life in children with Duchenne and Becker muscular dystrophy.

NCT ID: NCT06174025 Completed - Clinical trials for Duchenne Muscular Dystrophy

Validity and Reliability of the 6 Minute Pegboard Ring Test

Start date: June 30, 2023
Phase:
Study type: Observational

This study aimed to investigate the validity and reliability of 6PBRT in individuals with DMD and its applicability on these patients.

NCT ID: NCT06103006 Completed - Clinical trials for Duchenne Muscular Dystrophy

Remote Physiotherapy to Protect Physical Health in Duchenne Muscular Dystrophy

Start date: January 1, 2021
Phase: N/A
Study type: Interventional

Duchenne Muscular Dystrophy (DMD) is a progressive genetic neuromuscular disease characterized by progressive loss of motor function, respiratory failure, and cardiomyopathy required regular physiotherapy. With the outbreak of the pandemic rehabilitation centers that make up the weekly physiotherapy routine of children with disabilities have slowed down or even stopped their activities. So DMD who have additional diseases such as respiratory muscle weakness, spinal deformity, obesity, and cardiac dysfunction have also been negatively affected. The 'telerehabilitation' method, which is well planned and prepared for the abilities and needs of patients and caregivers, is seen as a good option at this point. Studies, reporting the feasibility and safety of telerehabilitation in joint replacement, multiple sclerosis, and post-operative conditions, report that the length of stay was reduced, there was access to the same level of service regardless of the distance, and there was no travel cost. Despite these advantages, the framework and applicability of telerehabilitation programs have been investigated limited and not focused on effectiveness of telerehabilitation in patients with DMD. According to the current knowledge, telerehabilitation in DMD is a subject that needs to be investigated in terms of its benefits. So, in this study, it was aimed to show the telerehabilitation's feasibility and its effects on performance level, endurance, fall frequency, pulmonary functions, and satisfaction level with the program in individuals with DMD.

NCT ID: NCT05990608 Completed - Clinical trials for Duchenne Muscular Dystrophy (DMD)

Peabody Developmental Motor Scaling In Children With Period Duchenne Muscular Dystrophy

Start date: July 30, 2021
Phase:
Study type: Observational

To perform the reliability and validity study of the Peabody Developmental Motor Scale (Peabody Developmental Motor Scales-2) in children with Duchenne Muscular Dystrophy (DMD).

NCT ID: NCT05688072 Completed - Clinical trials for Muscular Dystrophy, Duchenne Type

Trunk Oriented Exercises Versus Whole-body Vibration for Duchenne Muscular Dystrophy

Start date: January 15, 2023
Phase: N/A
Study type: Interventional

The abdominal muscles play an important role in stabilizing the trunk and providing postural stability. Children with Duchene muscular dystrophy have weak muscles, which may impair postural adjustments. These postural adjustments are required for gait and dynamic balance during the daily living activities.

NCT ID: NCT05657938 Completed - Clinical trials for Duchenne Muscular Dystrophy

Evaluation of Home Based Assessments on Participants With DMD

Start date: October 13, 2022
Phase:
Study type: Observational

This study is designed to evaluate the feasibility, wearability and participant satisfaction of novel outcome assessment tools in DMD patients which are performed in the home environment.

NCT ID: NCT05575648 Completed - Clinical trials for Duchenne Muscular Dystrophy

Dual Task in Duchenne Muscular Dystrophy

Start date: September 6, 2022
Phase: N/A
Study type: Interventional

This study was planned to determine the effects of the dual-task performance of children with DMD with motor dysfunction and varying degrees of cognitive impairment compared to their healthy peers, to compare the dual-task performance of children with different functional levels, and to determine the relationship between parameters that may affect dual-task performance.