iConquerMS™ - A Patient-Powered Research Network for Multiple Sclerosis

Multiple Sclerosis Clinical Trial

— iCMS  

Clinical Trial Details — Status: Recruiting

Administrative data

• NCT number: NCT02486562
• Other study ID #: ACP-MS-PPRN-001
• Status: Recruiting
• Start date: November 2014
• Est. completion date: October 2036

Study information

• Verified date: April 2024
• Source: Accelerated Cure Project for Multiple Sclerosis
• Contact: Sara Loud, MSEE, MBA
• Phone: 781-487-0032
• Email: sloud[@]acceleratedcure.org
• Is FDA regulated: No
• Study type: Observational

Clinical Trial Summary

iConquerMS™ is a research initiative developed by and for people with multiple sclerosis (MS) to contribute their health data and ideas to advance and accelerate research into MS.

Description:

The purpose of this study is to create a Multiple Sclerosis Patient-Powered Research Network (MS-PPRN) that includes at least 20,000 people with multiple sclerosis (MS) who contribute data on their health and other topics. Survey data will be made available to research scientists who are studying MS and similar diseases. Our goal is to use this data to answer questions that researchers and people with MS have regarding the disease, including its causes, treatments, and other topics. The MS-PPRN will be part of a national network for conducting research called PCORnet, the National Patient-Centered Clinical Research Network. PCORnet is supported by the Patient-Centered Outcomes Research Institute (PCORI). As the MS-PPRN is part of PCORnet, the data collected in surveys you complete may also be shared with researchers studying other diseases within the PCORnet network. While the MS-PPRN is focused on enrolling people with MS, people without MS are also welcome to participate in this research study. This study will be conducted online via the iConquerMS.org website. This is an ongoing study and will last for an indefinite period of time.

Recruitment information / eligibility

• Status: Recruiting
• Enrollment: 20000
• Est. completion date: October 2036
• Est. primary completion date: October 2026
• Accepts healthy volunteers: Accepts Healthy Volunteers
• Gender: All
• Age group: 21 Years and older

Eligibility

Inclusion Criteria:

• 21 years of age or older at the time of informed consent.

Exclusion Criteria:

• Unwilling or unable to provide informed consent.

Related Conditions & MeSH terms

• Multiple Sclerosis
• Sclerosis

Locations

Country	Name	City	State
United States	Accelerated Cure Project	Waltham	Massachusetts

Sponsors (4)

Lead Sponsor	Collaborator
Accelerated Cure Project for Multiple Sclerosis	Arizona State University, Ogilvy, Patient-Centered Outcomes Research Institute

Country where clinical trial is conducted

United States, 

Outcome

Type	Measure	Description	Time frame	Safety issue
Primary	Number of people with multiple sclerosis who experience health-related quality-of-life changes		1 year