Intellectual Disability Clinical Trial
— PCORIOfficial title:
Engagement in Healthy Communities for People With Intellectual and Developmental Disabilities
Verified date | December 2020 |
Source | University of Wisconsin, Madison |
Contact | n/a |
Is FDA regulated | No |
Health authority | |
Study type | Interventional |
The objectives of this project are to to build sustainable regional communities of Intellectual or Developmental Disabilities (IDD) stakeholders to provide ongoing input to research priorities, methodological processes, and relevant person-centered health outcomes; leverage existing Special Olympic infrastructure to nationally disseminate the toolkit in order to increase participation and engagement in research and improve health outcomes; conduct comparative effectiveness trials that incorporate people with IDD focusing on their research priorities.
Status | Completed |
Enrollment | 57 |
Est. completion date | October 31, 2020 |
Est. primary completion date | October 31, 2020 |
Accepts healthy volunteers | Accepts Healthy Volunteers |
Gender | All |
Age group | 18 Years and older |
Eligibility | Inclusion Criteria: - Individuals with Intellectual or Developmental Disabilities (IDD) - Caregiver or family member of the individual with IDD - Patients/consumer - Clinician - Complete informed consent or assent Exclusion Criteria: - |
Country | Name | City | State |
---|---|---|---|
United States | Waisman Center | Madison | Wisconsin |
Lead Sponsor | Collaborator |
---|---|
University of Wisconsin, Madison |
United States,
Type | Measure | Description | Time frame | Safety issue |
---|---|---|---|---|
Primary | READI Curriculum Development | The development of an online health research curriculum incorporating stakeholders as part of the development team. | Up to one year | |
Primary | Health Research Infographic Development | The development of health research infographics incorporating stakeholders as part of the development team that will bridge knowledge dissemination between researchers and people with IDD. | Up to one year |
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