Genetic Counseling Clinical Trial
Official title:
Genetic Counselors' Experiences of Moral Value Conflicts With Clients
Verified date | March 31, 2007 |
Source | National Institutes of Health Clinical Center (CC) |
Contact | n/a |
Is FDA regulated | No |
Health authority | |
Study type | Observational |
This study will examine the experience of moral value conflicts among genetic counselors.
Previous research has shown that value conflicts do exist among genetic counselors, but
little is known about the nature or consequences of these conflicts. This is a sub-study of
the "Manifestations and Consequences of Moral Distress Among Genetic Service Providers: An
Exploratory Study," which includes genetic counselors, nurses and medical geneticists.
Genetic counselors are recruited for this value-conflict sub-study from among those
participating in the Moral Distress study. Participants are interviewed in-depth by telephone
about their experiences of moral value conflicts with clients. The interviews cover the
following: situations in which the counselor has disagreed with a client's decision or views
on a moral level; the counselor's thought processes during and after a session in which
conflicts arise; the counselor's feelings and emotions associated with sessions involving a
moral value conflict; the counselor's current and previous work settings; the counselor's
view of his or her role and responsibility in a client's decision; challenging a client's
values or decision; and preparation for value conflicts.
Status | Completed |
Enrollment | 0 |
Est. completion date | March 31, 2007 |
Est. primary completion date | |
Accepts healthy volunteers | No |
Gender | All |
Age group | N/A and older |
Eligibility |
- INCLUSION / EXCLUSION CRITERIA: A sample of approximately 30 genetic counselors will be interviewed for this study. |
Country | Name | City | State |
---|---|---|---|
United States | Johns Hopkins University School of Medicine | Baltimore | Maryland |
Lead Sponsor | Collaborator |
---|---|
National Human Genome Research Institute (NHGRI) |
United States,
Hodgson J, Spriggs M. A practical account of autonomy: why genetic counseling is especially well suited to the facilitation of informed autonomous decision making. J Genet Couns. 2005 Apr;14(2):89-97. — View Citation
Status | Clinical Trial | Phase | |
---|---|---|---|
Terminated |
NCT02586428 -
Noninvasive Prenatal Testing
|
N/A | |
Completed |
NCT00047905 -
Pilot Study of the Process of Prenatal Genetic Counseling
|
N/A | |
Completed |
NCT04119349 -
Influence of Prenatal Counseling in Invasive Testing
|
N/A | |
Active, not recruiting |
NCT04428710 -
Assessment Psychological Distress for Cancer Heredity Test
|
||
Recruiting |
NCT05360095 -
Comparing Game Facilitated Interactivity to Genetic Counseling for Prenatal Screening Education
|
N/A | |
Completed |
NCT03024424 -
Value of Genetic Counseling and Testing for Patients Who Would Like to Know More About Their Personal Risk of AMD
|
N/A | |
Completed |
NCT04575350 -
Reinterpretation of CNV With Unknown Significance: a 5-year Retrospective Analysis
|
||
Enrolling by invitation |
NCT05422573 -
Clinical Trial of the Sequence of Cardiovascular Genetic Counseling and Testing
|
N/A | |
Completed |
NCT05805982 -
Educational Video Versus In-person Genetic Counseling for Hereditary Cancer
|
N/A | |
Completed |
NCT00057694 -
The Value of Genetic Information to Adult Adopted Individuals
|
N/A | |
Completed |
NCT03006913 -
Comparison of 3 Modes of Genetic Counseling in High-Risk Public Hospital Patients
|
N/A |