Cough Clinical Trial
Official title:
Prevalence and Use of Mechanical Cough Augmentation in Children With Neuromuscular Disorders in Norway
The study investigates the prevalence and use of mechanical insufflation - exsufflation (MI-E) in children with Neuromuscular disorders (NMD) in Norway. The NMD related prevalence of MIE use in Norway will be described and possible regional differences regarding use will be assessed.
Neuromuscular diseases (NMD) in children are severe, possibly life-threatening orphan
conditions. Respiratory tract infections and lung complications are the main causes of
increased morbidity and mortality.
The use of mechanical cough augmentation with insufflation-exsufflation (MIE) is a strategy
to treat and prevent. Possible major benefits are described, but optimal settings for best
efficacy and comfort in children are not established.
The main objective is to determine the prevalence and use of MIE among children with NMD in
Norway. All children with NMD < 18 years which has received a machine for MI-E will be
invited to participate in the study.
The participants will be asked to complete two questionnaires. In addition will information
from the data card in the MI-E machines give information about use. The information will be
linked to the National register for Long term mechanical ventilation.
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