Childhood Cancer Clinical Trial
Official title:
Investigating the Needs of Childhood Cancer Survivors: The Unreported Experience
This feasibility study will determine the psychometric adequacy of a newly developed instrument - Childhood Cancer Survivor Study Needs Assessment Questionnaire (CCSS-NAQ). Additionally, the study will explore the feasibility of selected study methods -- sample selection, length of time to complete recruitment, and response rates - in order to inform a larger national periodic survey of adult survivors' health related needs
This study will focus on the following primary and secondary objectives:
1. Examine the construct validity, short-term stability, internal consistency and
item-response performance of a health-related needs assessment self-report instrument
for adult childhood cancer survivors
2. Inform future sample stratification by over-sampling minority and rural-dwelling
survivors to enhance the heterogeneity of the respondent pool;
3. Describe the met and unmet health-related needs and their covariates in a large,
stratified, random sample of childhood cancer survivors;
4. Evaluate the sample selection methods, length of time to complete recruitment, and
response rates in the study sample.
;
Observational Model: Cohort, Time Perspective: Prospective
| Status | Clinical Trial | Phase | |
|---|---|---|---|
| Enrolling by invitation |
NCT04202094 -
Fertility in Young Adults Who Did (Not) Store Testicular Tissue Before a Treatment Leading to Fertility Problems
|
N/A | |
| Active, not recruiting |
NCT03336931 -
PRecISion Medicine for Children With Cancer
|
||
| Not yet recruiting |
NCT05048771 -
Fertility and Temporality in Pediatric Oncology
|
||
| Completed |
NCT05982379 -
Motivation Program for Children With Cancer
|
N/A | |
| Completed |
NCT04066218 -
Sexual Function Screening in Childhood Cancer Survivors
|
||
| Completed |
NCT03934060 -
Strength Training and ADLs in Childhood Leukemia and Lymphoma Patients
|
N/A | |
| Active, not recruiting |
NCT03938324 -
Peer i-Coaching for Activated Self-Management Optimization in Adolescents and Young Adults With Chronic Conditions
|
N/A | |
| Active, not recruiting |
NCT04032743 -
Risk Factors and Treatment Outcome of Oncology Children Hospitalized in the Intensive Care Unit Due to Sepsis
|
||
| Active, not recruiting |
NCT04328350 -
Social Experiences of Adolescents and Young Adults With Cancer
|
||
| Not yet recruiting |
NCT05457153 -
Technology-Based Well-Being Process Program (WEBEPROP) for Children and Adolescents in Palliative Care
|
N/A | |
| Recruiting |
NCT05641961 -
Mobile App to Help Survivors of Childhood Cancer Navigate Long-Term Follow-Up Care
|
N/A | |
| Completed |
NCT06179914 -
Resilience Models in Adolescence and Youth With Cancer in Taiwan
|
||
| Completed |
NCT03951246 -
Cognitive and Motor Training in Pediatric Posterior Fossa Tumor Survivors
|
N/A | |
| Not yet recruiting |
NCT04902313 -
Cultivating Resilience in Oncology Practice
|
N/A | |
| Completed |
NCT03160768 -
Feasibility of Isolating P16 Expression
|
||
| Recruiting |
NCT06411704 -
Remote Exercise Video Adaptations to Maximize Physical Activity in Childhood Cancer
|
||
| Recruiting |
NCT06053268 -
Mindfulness Interventions to Improve Health Activation, Coping, and Stress Among Childhood Cancer Survivors
|
N/A | |
| Withdrawn |
NCT02130934 -
Cardiac 3D MRI in Pediatric Cancer Patients
|
N/A | |
| Completed |
NCT02216604 -
Exercise in Pediatric Cancer Patient Undergoing Anti-Cancer Treatment
|
N/A | |
| Recruiting |
NCT03852758 -
Green Exercise for Cancer - Creating Opportunities for Survivors
|
N/A |