Child-onset Disability Clinical Trial
Official title:
Optimizing Life Success Through Residential Immersive Life Skills Programs for Youth With Disabilities
| Verified date | March 2022 |
| Source | Holland Bloorview Kids Rehabilitation Hospital |
| Contact | n/a |
| Is FDA regulated | No |
| Health authority | |
| Study type | Interventional |
In Canada, between 3.6% and 7.7% of children under 19 years old are thought to have a chronic health condition that results in disability or limits to activity. These young people have difficulty finding jobs, attending school, living independently, and forming relationships with other people. These poorer life outcomes are partly the result of a lack of life skills. Life skills include the ability to solve problems and set goals, which allows youth to deal with the demands of everyday life. Several children's treatment centres in Ontario offer short-term residential immersive life skills (RILS) programs to provide youth with these life skills to help them take on adult roles. RILS programs are very promising in terms of making a long-term difference in youths' lives because they provide a place where youth can learn by doing, working with peers and taking risks in a safe environment. However, we do not yet know how well skills that are learned in RILS programs are kept up as time passes or how well RILS programs support broader skills, such as the ability to make one's own choices. The proposed research will examine these issues and will ask the following questions: 1. What opportunities are youth given when they participate in RILS programs? What specific strategies do RILS service providers use to support youth in learning life skills?; 2. How do youth experience and perceive their participation in a RILS program, before, during and after they take part? What do their parents expect and experience in terms of their child's participation?; and 3. What changes do youth experience, particularly in terms of their ability to make choices for themselves and their sense of being able to cope with things that come up in their lives? The study will involve youth from several treatment centres in Ontario over the next three years. Youth who are attending RILS programs will be compared with: 1. youth who are similar to the RILS youth, but who are taking part in a life skills program that is not residential; 2. youth who applied to a RILS program and were accepted, but who will take part in the program in a different year; and 3. a group of youth who are similar to the RILS youth but who are not taking part in any life skills program. Youth will provide data at four time points: before the program starts, immediately after the program finishes, three months after the program is over and 12 months after the program is over.
| Status | Completed |
| Enrollment | 29 |
| Est. completion date | March 31, 2021 |
| Est. primary completion date | March 31, 2021 |
| Accepts healthy volunteers | No |
| Gender | All |
| Age group | 14 Years to 21 Years |
| Eligibility | Inclusion Criteria: - All youth must be between 14 and 21 years of age, have a child-onset disability, be able to set goals for themselves, and speak English. - Parents who are enrolled must speak English. Exclusion Criteria: - Youth with severe behavioral issues will be excluded, since these would restrict the youth's ability to participate in a group learning experience. |
| Country | Name | City | State |
|---|---|---|---|
| Canada | Holland Bloorview Kids Rehabilitation Hospital | Toronto | Ontario |
| Lead Sponsor | Collaborator |
|---|---|
| Holland Bloorview Kids Rehabilitation Hospital | ErinoakKids Centre for Treatment and Development, McMaster Children's Hospital |
Canada,
| Type | Measure | Description | Time frame | Safety issue |
|---|---|---|---|---|
| Primary | Change in Arc's Self-Determination Scale scores | Baseline, 1 week post intervention, 3 months post intervention, 12 months post intervention | ||
| Secondary | Change in General Self-Efficacy Scale scores | Baseline, 1 week post intervention, 3 months post intervention, 12 months post intervention |