PPA Tele-Savvy: A Pilot Study of an Online Intervention for Caregivers of Persons Living With PPA

Caregiver Burnout Clinical Trial

Official title: Primary Progressive Aphasia (PPA) Tele-Savvy: A Pilot Study of an Online Intervention for Caregivers of Persons Living With PPA

Status Completed

Clinical Trial Summary

The primary goal of this pilot project is to adapt an evidence-informed on-line psychoeducation program (Tele-Savvy) to address the unique challenges facing informal caregivers of those living with PPA and geared toward achieving caregiver mastery in this population.

Clinical Trial Description

The primary goal of this pilot project is to develop an evidence-informed on-line psychoeducation program (Tele-Savvy) based on the well-established Savvy Caregiver program to address the unique challenges facing informal caregivers of those living with Primary Progressive Aphasia (PPA) and to help these caregivers achieve mastery. Key elements of the adaptation process are to identify and adapt mechanistic elements of the Tele-Savvy intervention (increasing self-efficacy, mastery of new skills, increased knowledge of disease-specific symptoms and trajectories, problem-solving skills). We will engage PPA caregivers in the process of adapting the existing Tele-Savvy program to fit their needs and then pilot test the adapted PPA Tele-Savvy program. ;

Related Conditions & MeSH terms

• Aphasia
• Aphasia, Primary Progressive
• Caregiver Burden
• Caregiver Burnout
• Frontotemporal Dementia
• Pick Disease of the Brain
• Primary Progressive Aphasia

• NCT number: NCT04412083
• Study type: Interventional
• Source: Northwestern University
• Status: Completed
• Phase: N/A
• Start date: July 30, 2020
• Completion date: September 19, 2023