Digital Storytelling in the NICU

Status Completed

Clinical Trial Summary

Our long-term goal is to reduce suffering and long-term negative consequences for families in the Neonatal Intensive Care Unit (NICU). The overall purpose of this study is to test feasibility of a legacy intervention for NICU parents.

Clinical Trial Description

Specific aims are: (1) To determine the feasibility of a legacy intervention for NICU parents; and (2) to determine the feasibility of psychosocial instruments for NICU parents. We will recruit parents (N = 12) of 6 infants in the NICU who have received a palliative care consultation and expected to die by 1 year of age based on provider report. We will use a one-group pre- and post-test design. The intervention will be delivered by the PI or trained study staff conducting video-taped interviews with parents in private NICU rooms to create a digital story about their infant. The videographer will use the video and music selected by parents to create a digital story about the infant. The final digital story is provided to parents on a DVD or unlisted (private) YouTube link to keep. Parents will complete electronic psychosocial measures at enrollment (baseline/pre-intervention) and post-intervention. ;

Study Design

Related Conditions & MeSH terms

Bereavement

Clinical Trial Details

NCT number	NCT04254718
Study type	Interventional
Source	Vanderbilt University
Contact
Status	Completed
Phase	N/A
Start date	October 12, 2020
Completion date	June 30, 2021

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