The Italian Transthyretin Amyloidosis Web-Network — ITA-WebNet

ATTR Amyloidosis Clinical Trial

Official title:
The Italian Transthyretin Amyloidosis Web-Network (ITA-WebNet)

Status Recruiting

Clinical Trial Summary

The study aims, by generating a large registry of patients with ATTR amyloidosis, including data at diagnosis and during follow up, to describe the natural history of ATTR amyloidosis in a real-world setting and to define and validate prognostic models, response criteria applicable at any point of the disease. The registry will also be used for data sharing and to allow the possibility of a close collaboration amongst the amyloidosis experts of the ARTC and all the physicians around the Country involved in the diagnosis and management of systemic amyloidosis. Thanks to the online registry, the diagnostic facility of the ARTC will be made available to requesting physicians.

Clinical Trial Description

n/a

Study Design

Related Conditions & MeSH terms

Clinical Trial Details

NCT number	NCT05444920
Study type	Observational [Patient Registry]
Source	IRCCS Policlinico S. Matteo
Contact	Paolo Milani, MD, PhD
Phone	+390382502994
Email	p.milani@smatteo.pv.it
Status	Recruiting
Phase
Start date	July 13, 2022
Completion date	November 1, 2027

View Details

See also
Status	Clinical Trial	Phase
Completed	`NCT02595983` - The Study of an Investigational Drug, Revusiran (ALN-TTRSC), for the Treatment of Transthyretin (TTR)-Mediated Amyloidosis in Patients Whose Disease Has Continued to Worsen Following Liver Transplant	Phase 2
Recruiting	`NCT04561518` - ConTTRibute: A Global Observational Study of Patients With Transthyretin (TTR)-Mediated Amyloidosis (ATTR Amyloidosis)
Recruiting	`NCT05184088` - Efficacy of [18F]Florbetaben PET for Diagnosis of Cardiac AL Amyloidosis	Phase 3
Recruiting	`NCT06367842` - Orthopaedic Specimen Pathology and Early Diagnosis of ATTR Cardiopathy (ATTR-ORTHO)
Recruiting	`NCT06355934` - OverTTuRe: Characteristics, Treatment Patterns and Outcomes of Patients With ATTR Amyloidosis