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Clinical Trial Details — Status: Completed

Administrative data

NCT number NCT00302198
Other study ID # 23.112
Secondary ID
Status Completed
Phase N/A
First received March 10, 2006
Last updated March 1, 2010
Start date January 2006
Est. completion date February 2010

Study information

Verified date February 2010
Source Forbes Norris MDA/ALS Research Center
Contact n/a
Is FDA regulated No
Health authority United States: Institutional Review Board
Study type Observational

Clinical Trial Summary

The purpose is to collect data for ALS research. The data will be used to learn more about the origin of ALS and to improve quality of care for people with ALS. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research.


Description:

Any person who has been diagnosed with ALS by a physician can enroll into this registry.

The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research. An additional focus of this website will be to educate participating patients and visitors to this site about ongoing ALS research.


Recruitment information / eligibility

Status Completed
Enrollment 15000
Est. completion date February 2010
Est. primary completion date February 2010
Accepts healthy volunteers No
Gender Both
Age group N/A and older
Eligibility Inclusion Criteria:

- There are no inclusion and exclusion criteria beyond the fact that a person needs to have ALS in order to enroll.

Study Design

Time Perspective: Prospective


Intervention

Behavioral:
ALS Registry


Locations

Country Name City State
United States Forbes Norris MDA/ALS Center San Francisco California

Sponsors (2)

Lead Sponsor Collaborator
Forbes Norris MDA/ALS Research Center Muscular Dystrophy Association

Country where clinical trial is conducted

United States, 

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