Interviews With Older People From Turkish Origin in Belgium About Advance Care Planning

Advance Care Planning Clinical Trial

Official title:

Advance Care Planning Among Older People From Turkish Origin in Belgium: An Exploratory Interview Study

Clinical Trial Details — Status: Completed

Administrative data

• NCT number: NCT03930823
• Other study ID #: ACP-TR-1-2018
• Status: Completed
• Phase: N/A
• Start date: March 18, 2019
• Est. completion date: March 31, 2023

Study information

• Verified date: May 2022
• Source: Universitair Ziekenhuis Brussel
• Contact: n/a
• Is FDA regulated: No
• Study type: Interventional

Clinical Trial Summary

Advance care planning (ACP) enables individuals to define goals and preferences for future medical treatment and care, to discuss these goals and preferences with family and health-care providers, and to record and review these preferences if appropriate. Research has shown that most Western patients express the need about what ACP entails.

Ethnicity creates an important cultural impact on how people look at life and death, so that there is an influence on making decisions about end-of-life care. The Turkish ethnic group is one of the largest visible non-Western minority groups in Western countries. Studies on how ACP is perceived among patients from Turkish origin are lacking.

The objective of this study is exploring the knowledge, experiences, point of views, preferences, attitudes, facilitators and barriers concerning advance care planning of older people from Turkish origin in Belgium. Semi-structured interviews (in the native Turkish language) will be used.

Recruitment information / eligibility

• Status: Completed
• Enrollment: 51
• Est. completion date: March 31, 2023
• Est. primary completion date: December 31, 2022
• Accepts healthy volunteers: No
• Gender: All
• Age group: 65 Years and older

Eligibility

Inclusion Criteria:

People:

• with Turkish origin who live in Belgium and are older than 65 years

• who have also given informed consent to participate in this qualitative interview study

Exclusion Criteria:

• Patients who are terminal ill which means having a life-limiting disease with irreversible decline and who are actively dying (actively dying is related to patients with days of survival). (41)

• Having cognitive impairment

Related Conditions & MeSH terms

• Advance Care Planning
• Advance Medical Directives
• Ethnic Minorities
• Living Will
• Muslims
• Turkish Origin

Intervention

Other:
• Interview
One to one interview

Locations

Country	Name	City	State
Belgium	Faculteit Geneeskunde en Farmacie	Brussels

Sponsors (1)

Lead Sponsor	Collaborator
Universitair Ziekenhuis Brussel

Country where clinical trial is conducted

Belgium, 

Outcome

Type	Measure	Description	Time frame	Safety issue
Primary	Knowledge about advance care planning from older people from Turkish origin in Belgium	This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you know in relation to advance care planning?	9 months
Primary	Experiences about advance care planning from older people from Turkish origin in Belgium	This is a qualitative study. We developed a semi-structured interview guide with the following questions:Have you yourself ever thought about your future healthcare? Have you yourself ever looked up something about that?	9 months
Primary	Views/preferences about advance care planning from older people from Turkish origin in Belgium	This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you think about discussing advance care planning now for the future? Even if you do not have such a serious illness at the moment, what are the advantages and disadvantages about discussing your wishes for the future, now?	9 months
Primary	Attitudes about advance care planning from older people from Turkish origin in Belgium	This is a qualitative study. We developed a semi-structured interview guide with the following questions: Before you got severe illness, do you wish to discuss to someone your future wishes in advance? Why? Do you wish to give authority on your behalf to someone? Why?	9 months
Primary	Barriers and facilitators for advance care planning from older people from Turkish origin in Belgium	This is a qualitative study. We developed a semi-structured interview guide with the following questions: In your opinion, what makes it easier or what would make it easier to talk about advance care planning? In your opinion, what makes it harder to talk about advance care planning?	9 months