Epilepsy — COPE Intervention for Parents of Children With Epilepsy
Citation(s)
Amdam, A , Langslet, B., & Holmseth, T. (2001). The penguin: A teaching Ppan for children with epilepsy. In: Pfafflin, M., Fraser, Thorbecke et al. (Eds). Comprehensive care for people with epilepsy. London: John Libbey.
Austin JK, Dunn DW, Johnson CS, Perkins SM Behavioral issues involving children and adolescents with epilepsy and the impact of their families: recent research data. Epilepsy Behav. 2004 Oct;5 Suppl 3:S33-41.
Austin JK, Dunn DW Children with epilepsy: quality of life and psychosocial needs. Annu Rev Nurs Res. 2000;18:26-47. Review.
Austin, J K., McNelis, A.M., Shore, C.P., Dunn, D.W., & Musick, B. (2002). A feasibility study of a family seizure management program: "Be Seizure Smart." Journal of Neuroscience Nursing, 34(1), 30-37.
Aytch LS, Hammond R, White C Seizures in infants and young children: an exploratory study of family experiences and needs for information and support. J Neurosci Nurs. 2001 Oct;33(5):278-85.
Bazil CW Comprehensive care of the epilepsy patient--control, comorbidity, and cost. Epilepsia. 2004;45 Suppl 6:3-12. Review.
Carlton-Ford S, Miller R, Nealeigh N, Sanchez N The effects of perceived stigma and psychological over-control on the behavioural problems of children with epilepsy. Seizure. 1997 Oct;6(5):383-91.
Hufford, B S., Glueckauf, R.L., & Webb, P.M. (1999). Home-based, interactive videoconferencing for adolescents with epilepsy and their families. Rehabilitation Psychology, 44(2), 176-193.
Jacoby A, Snape D, Baker GA Epilepsy and social identity: the stigma of a chronic neurological disorder. Lancet Neurol. 2005 Mar;4(3):171-8. Review.
Keller D, Honig AS Maternal and paternal stress in families with school-aged children with disabilities. Am J Orthopsychiatry. 2004 Jul;74(3):337-48.
Low SM, Stocker C Family functioning and children's adjustment: associations among parents' depressed mood, marital hostility, parent-child hostility, and children's adjustment. J Fam Psychol. 2005 Sep;19(3):394-403. Erratum in: J Fam Psychol. 2012 Apr;26(2):253.
Melnyk BM, Alpert-Gillis LJ The COPE program: a strategy to improve outcomes of critically ill young children and their parents. Pediatr Nurs. 1998 Nov-Dec;24(6):521-7.
Melnyk BM, Feinstein NF, Moldenhouer Z, Small L Coping in parents of children who are chronically ill: strategies for assessment and intervention. Pediatr Nurs. 2001 Nov-Dec;27(6):548-58. Review.
Melnyk BM Coping with unplanned childhood hospitalization: effects of informational interventions on mothers and children. Nurs Res. 1994 Jan-Feb;43(1):50-5.
Melnyk BM Parental coping with childhood hospitalization: a theoretical framework to guide research and clinical interventions. Matern Child Nurs J. 1995 Oct-Dec;23(4):123-31. Review.
Mu PF, Kuo HC, Chang KP Boundary ambiguity, coping patterns and depression in mothers caring for children with epilepsy in Taiwan. Int J Nurs Stud. 2005 Mar;42(3):273-82.
Mu PF, Wong TT, Chang KP, Kwan SY Predictors of maternal depression for families having a child with epilepsy. J Nurs Res. 2001 Sep;9(4):116-26.
Mu PF Paternal reactions to a child with epilepsy: uncertainty, coping strategies, and depression. J Adv Nurs. 2005 Feb;49(4):367-76.
Interventional studies are often prospective and are specifically tailored to evaluate direct impacts of treatment or preventive measures on disease.
Observational studies are often retrospective and are used to assess potential causation in exposure-outcome relationships and therefore influence preventive methods.
Expanded access is a means by which manufacturers make investigational new drugs available, under certain circumstances, to treat a patient(s) with a serious disease or condition who cannot participate in a controlled clinical trial.
Clinical trials are conducted in a series of steps, called phases - each phase is designed to answer a separate research question.
Phase 1: Researchers test a new drug or treatment in a small group of people for the first time to evaluate its safety, determine a safe dosage range, and identify side effects.
Phase 2: The drug or treatment is given to a larger group of people to see if it is effective and to further evaluate its safety.
Phase 3: The drug or treatment is given to large groups of people to confirm its effectiveness, monitor side effects, compare it to commonly used treatments, and collect information that will allow the drug or treatment to be used safely.
Phase 4: Studies are done after the drug or treatment has been marketed to gather information on the drug's effect in various populations and any side effects associated with long-term use.
