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In-Home Care for Patients With PSP and Related Disorders

Multiple System Atrophy Clinical Trial

Official title:
CarePSP: Care Where It Counts - Interdisciplinary Home Visits for PSP-Related Disorders

Clinical Trial Summary

Progressive Supranuclear Palsy and related disorders (PRD) are debilitating, costly, and understudied conditions. Improving access to comprehensive, specialized, in-home patient care offers the potential to minimize the downward spiral of morbidity and preventable healthcare utilization. The aim of this study is to test whether and to what degree an interdisciplinary home visit program will improve patient- and caregiver-reported outcomes, and to identify unmet needs in this population.

Clinical Trial Description

Participants can elect to complete either the Home Visit Arm of the study or the Usual Care Arm of the study. Home Visit Arm: This interdisciplinary home visit program consists of 4 visits to patients' homes over the course of one year from a team of a movement disorders doctor, a nurse, a research coordinator, and a social worker. The team will come to a patient's home and assess the needs of both the patient and caregiver (if present), and connect the patient with any needed services. These visits can replace or be in addition to seeing another movement disorders doctor. Usual Care Arm: The information collected from the home visit participants will be compared to data collected from participants who elect to complete the usual care arm of the study. These participants and their caregivers (if available) will be invited to complete an online version of the survey. They will be contacted 12 months after their initial completion of the survey to complete a follow-up survey. ;

Study Design

Related Conditions & MeSH terms

Clinical Trial Details
NCT number NCT03552484
Study type Interventional
Source Rush University Medical Center
Contact
Status Completed
Phase N/A
Start date May 30, 2018
Completion date December 31, 2020
View Details
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