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Cardiomyopathy, Hypertrophic clinical trials

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NCT ID: NCT04112290 Recruiting - Clinical trials for Hypertrophic Cardiomyopathy

A Prospective Incident Study of Arrhythmias in Hypertrophic Cardiomyopathy

Start date: November 5, 2019
Phase:
Study type: Observational

The purpose of this research study is to understand more about various heart rhythms (electrical problems) in persons with hypertrophic cardiomyopathy with and without sleep apnea.

NCT ID: NCT04080492 Recruiting - Quality of Life Clinical Trials

A Cardiac Disease Quality of Life Study

UPLIFT
Start date: August 26, 2019
Phase:
Study type: Observational

A prospective, longitudinal, non-comparator, non-randomized observational cohort study to assess the quality of life in adult patients affected by hypertrophic cardiomyopathy and thoracic aortic dilatations who are not amenable to surgery, as well as those affected radiation-induced cardiac disease caused by radiation therapy.

NCT ID: NCT03846297 Recruiting - Clinical trials for Hypertrophic Cardiomyopathy

Optimisation of Decision Making for Defibrillator Implantation in Hypertrophic Cardiomyopathy

OPTIM-HCM
Start date: September 23, 2020
Phase:
Study type: Observational

The main objective of the study is to improve implantable cardioverter defibrillator (ICD) implantation decision-making processing relevance by developing a new prediction model of sudden cardiac death (SCD) in hypertrophic cardiomyopathy (HCM), including newly identified potential biomarkers by magnetic resonance imaging (MRI) and genetics, through a prospective nationwide study, multivariate analysis and modelling of an absolute risk. The secondary objective is to perform a medico-economic analysis of ICD implantation in order to define an optimal rule for ICD implantation in patients with HCM, taking into account the benefits of ICD, adverse effects of ICD and associated costs (cost of quality adjusted life years saved).

NCT ID: NCT03726424 Recruiting - Clinical trials for Hypertrophic Cardiomyopathy

Outcome of Different Pathogenic Mutations in Hypertrophic Cardiomyopathy

Start date: February 25, 2011
Phase:
Study type: Observational

This is a prospective, single-center study to assess clinical phenotype and prognosis of different pathogenic mutations in Chinese patients with hypertrophic cardiomyopathy. Patients with hypertrophic cardiomyopathy were consecutively recruited, and then DNA samples were extracted from peripheral blood. Targeted sequencing of 142 genes was performed to obtain variants associated with hypertrophic cardiomyopathy. Patients will undergo face-to-face interviews, phone calls, or/and chart reviews at 6 months, 12 months, 24 months, 36 months, 48 months and 60 months for data collection of clinical outcomes.

NCT ID: NCT03572569 Recruiting - Clinical trials for Hypertrophic Cardiomyopathy

Risk Stratification in Children and Adolescents With Primary Cardiomyopathy

RIKADA
Start date: January 2013
Phase:
Study type: Observational

RIKADA is a prospective study performing systematic family screening including clinical and genetic testing in pediatric patients with primary cardiomyopathy and their first-degree relatives with the aim to facilitate risk stratification.

NCT ID: NCT03362164 Recruiting - Fabry Disease Clinical Trials

Evaluation of HEArt invoLvement in Patients With FABRY Disease

HEAL-FABRY
Start date: January 2001
Phase:
Study type: Observational

This study evaluates predictors for the incidence of arrhythmias and sudden cardiac death as well as terminal heart failure in patients with Fabry disease.

NCT ID: NCT03327623 Recruiting - Clinical trials for Hypertrophic Cardiomyopathy

Sleep Apnea and Hypertrophic Cardiomyopathy (HCM)

Start date: November 13, 2017
Phase:
Study type: Observational

The investigators are trying to find out how common sleep apnea is in hypertrophic cardiomyopathy. The purpose of this study is to see if sleep apnea is common in hypertrophic cardiomyopathy and if its presence is associated with changes in the functioning of the body. The investigators want to determine if sleep apnea is associated with electrical disorders of the heart in patients with hypertrophic cardiomyopathy.

NCT ID: NCT03278457 Recruiting - Clinical trials for Hypertrophic Cardiomyopathy

Risk Stratification Using PET in HCM

HCM-PET
Start date: May 3, 2017
Phase: N/A
Study type: Observational

The overall rationale is to reduce the risk of sudden cardiac death in individuals with hypertrophic cardiomyopathy (HCM). The novel approach of this study is to correlate Positron Emission Tomography (PET) findings to ventricular arrhythmias detected by the implantable cardioverter defibrillator (ICD). This could potentially lead to an improved risk stratification of HCM patients.

NCT ID: NCT03259113 Recruiting - Clinical trials for Hypertrophic Cardiomyopathy

Insertable Cardiac Monitors in Hypertrophic Cardiomyopathy

ElucidateHcm
Start date: August 16, 2017
Phase: N/A
Study type: Interventional

Hypertrophic cardiomyopathy (HCM) is associated with sudden cardiac death and an increased risk of atrial fibrillation and subsequent embolic event. An insertable cardiac monitor will provide data on cardiac rhythm over a period of 18 months. This will provide an extended monitoring far longer than 24-48 hours of Holter monitoring as is currently usual care. Therefore, detection of arrhythmias could be used in risk stratification and decision-making with regard to offer an implantable defibrillator and anticoagulants.

NCT ID: NCT03251287 Recruiting - Clinical trials for Cardiomyopathy, Hypertrophic

Nitrite in Hypertrophic Cardiomyopathy (HCM) Study

Start date: November 2017
Phase: Phase 1
Study type: Interventional

Inorganic nitrate, which is found at high levels in green leafy vegetables, is reduced to nitrite by bacteria in the mouth, swallowed, and absorbed in the stomach into the blood. Studies have shown that increasing the blood levels of nitrite improves the way that muscles use oxygen and energy during exercise, and potentially blood flow. Some people (~1 in 500) suffer from a type of genetic heart condition known as hypertrophic cardiomyopathy (HCM). This condition means that the muscle in the heart does not use energy well and becomes larger than average, meaning that they have to tap into the heart's 'energy reserves'. It is not known if nitrite has the same beneficial effects on heart muscle as on other muscles in the body. Our study will explore the mechanism by which nitrite may improve the function and energy status of the heart in HCM.