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Glycogen Storage Disease Type II clinical trials

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NCT ID: NCT01526785 Terminated - Pompe Disease Clinical Trials

A Study to Evaluate the Efficacy and Safety of Alglucosidase Alfa Produced at the 4000 L Scale for Pompe Disease

Start date: March 2012
Phase: Phase 4
Study type: Interventional

The objective of this study was to evaluate the efficacy and safety of treatment with 4000 litre (L) alglucosidase alfa (Lumizyme®) in Pompe participants.

NCT ID: NCT01482494 Not yet recruiting - Pompe Disease Clinical Trials

Detection of Pompe Disease in Adult Patients With Myopathies of Uncertain Origin or With Asymptomatic Hyper-CK-emia

Start date: December 2011
Phase: N/A
Study type: Observational

The adult onset form can occur between the second and sixth decades of life as a form of proximal myopathy, predominantly in the pelvic girdle area. Sometimes the first symptoms are shortness of breath and diaphragm weakness which herald progressive proximal muscle weakness. The heart and liver are not affected. Serum CK (Creatine Kinase) activity is 2 to 10 times higher than normal. EMG (electromyogram) testing usually reveals a myopathic pattern and muscle biopsy may show vacuoles containing an accumulation of glycogen that is not broken down. Until fairly recently, an assay of acid maltase activity using cultured fibroblasts after biopsy of skin or muscle tissue was required for diagnosis, as leukocytes contain a renal isoenzyme that is not absent in these patients and which can mask the deficit and result in false negatives. In recent years this problem has ben solved by the introduction of acarbose, an inhibitor of renal α-glucosidase; it is also used in the dried blood spot method, which measures acid maltase activity using maltose and acarbose as inhibitors and 4-methylumbelliferyl-D-glucopyranoside as substrate.

NCT ID: NCT01457443 Withdrawn - Lung Disease Clinical Trials

Biomarker for Pompe Disease (BioPompe)

BioPompe
Start date: August 20, 2018
Phase:
Study type: Observational

Development of a new MS-based biomarker for the early and sensitive diagnosis of Pompe disease from blood (plasma)

NCT ID: NCT01451879 Completed - Pompe Disease Clinical Trials

Observational Study for Subjects With Pompe Disease Undergoing Immune Modulation Therapies

Start date: October 2008
Phase: N/A
Study type: Observational

Hypothesis: the effectiveness of treatment of Pompe Disease with rhGAA enzyme replacement therapy (ERT) is limited at least in part because patients develop antibodies against the provided rhGAA enzyme. Treatment with immunomodulatory drugs may dampen or eliminate the anti-rhGAA immune response in patients receiving ERT, thereby allowing for greater ERT efficacy. Studying the immune response to rhGAA may provide valuable insight into the role of the immune system in the effectiveness of ERT for Pompe Disease.

NCT ID: NCT01435772 Terminated - Pompe Disease Clinical Trials

Extension Study for Patients Who Have Participated in a BMN 701 Study

Start date: August 15, 2011
Phase: Phase 2
Study type: Interventional

This is a Phase 2 open-label, multiple dose study of BMN 701 administered by IV infusion every 2 weeks (qow) to patients with late-onset Pompe disease.

NCT ID: NCT01410890 Completed - Pompe Disease Clinical Trials

Pharmacokinetics of Alglucosidase Alfa in Patients With Pompe Disease

PAPAYA
Start date: November 3, 2014
Phase: Phase 4
Study type: Interventional

- The primary objective of this study was to characterize the pharmacokinetics (PK) of alglucosidase alfa manufactured at the 4000 L scale in participants who had a confirmed diagnosis of Pompe disease. - A secondary objective of this study was to evaluate and explore the relationship between anti-recombinant human acid alpha-glucosidase antibody titers and the PK of alglucosidase alfa.

NCT ID: NCT01409486 Not yet recruiting - Pompe Disease Clinical Trials

Screening for Early Detection and Prevention of Pompe Disease in Israel Using Tandem Mass Spectrometry

LC-MS-MS
Start date: September 2011
Phase: N/A
Study type: Observational

The aim of the study is: to develop a comprehensive biochemical assay for detection of Pompe disease (glycogen storage disease type II), to be implemented in the Newborn screening program among the Israeli population.

NCT ID: NCT01380743 Completed - Pompe Disease Clinical Trials

Drug-drug Interaction Study

Start date: October 31, 2011
Phase: Phase 2
Study type: Interventional

This study evaluates drug-drug interactions between AT2220 (duvoglustat) and recombinant human alpha-glucosidase (rhGAA, also known as alglucosidase alfa) in participants with Pompe Disease.

NCT ID: NCT01288027 Completed - Clinical trials for Pompe Disease (Late-Onset)

Exploratory Muscle Biopsy Assessment Study in Patients With Late-Onset Pompe Disease Treated With Alglucosidase Alfa

Start date: June 2011
Phase: Phase 4
Study type: Interventional

This is an open-label, multicenter study of participants with late-onset Pompe disease naive to treatment with enzyme replacement therapy (ERT). The primary objective of this study is to evaluate glycogen clearance in muscle tissue samples collected pre and post alglucosidase alfa treatment in participants with Late-Onset Pompe disease. The secondary objectives are to characterize the disease burden in participants with late-onset Pompe disease and explore imaging, histologic, and functional assessments in these participants and to explore potential plasma or urine biomarkers relative to late-onset Pompe disease and participant's response to treatment with alglucosidase alfa (Myozyme®/Lumizyme®/GZ419829).

NCT ID: NCT01230801 Completed - Pompe Disease Clinical Trials

Safety/Tolerability/Pharmacokinetic (PK)/Pharmacodynamics (PD) Study of BMN701 in Patients With Late-Onset Pompe Disease

Start date: January 17, 2011
Phase: Phase 1/Phase 2
Study type: Interventional

A Phase 1/2, open-label, multicenter, multiple dose escalation study of BMN 701 administered by intravenous infusion every 2 weeks over a 24-week treatment period to patients with late-onset Pompe disease.