Cancer Clinical Trial
Official title:
Population-based Cancer Observatory of the French Region Sud-Provence-Alpes-Côte d'Azur Recruiting Incident Cases of Cancer Since 2005
Cancer is the leading cause of death in Western countries. In France cancer control plans
(National screening programmes) and recommendations for the management of cancer patients
(multidisciplinary team meetings), have been implemented. Evaluating the effectiveness of
these policies aiming for improved prevention and management is essential. However to conduct
such an evaluation, a baseline reference requiring ongoing, reliable and complete data
collection is necessary and can be used for epidemiological research.
There is no cancer registry in the French Region Sud-Provence-Alpes-Côte d'Azur. In view of
this situation, the regional Health Agency appointed the public health department of the Nice
Côte d'Azur University and the Centre for computerized pathology data collection
(CRISAP-PACA) to develop a Cancer Observatory. Since 2005, the public health department
collects data concerning invasive and in situ cancers from all the histopathology labs in the
French Region Sud-Provence-Alpes-Côte d'Azur, gathered in the CRISAP-PACA, and transmits
incidence cancer rates to the regional Health Agency. In 2007, a quality control procedure,
comparing a random sample of data collected by the Cancer Observatory with pathology lab
reports, confirmed the validity of the collected data with fewer than 3% in disagreement with
the report's conclusions. In 2008, the estimated completeness of cancer records collected
from histopathology laboratories was higher than 90% for new cases of breast and colorectal
cancer within the age range concerned by the screening programme. Since 2012, public and
private hospitals treating cancer patients as well as the regional cancer network ONCOPACA,
coordinating multiple team meetings, have been contacted to transmit to the public health
department cases of cancer without histological diagnosis. In addition, patients with cancer
have been geolocated to study the influence of environmental exposures on the occurrence of
cancers (patients living near of waste incinerator, highways).
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