Quality of Life in Patients With Congenital Afibrinogenemia — QualyAFIB

Afibrinogenemia, Congenital Clinical Trial

Official title:
Quality of Life in Patients With Congenital Afibrinogenemia

Status Completed

Clinical Trial Summary

The aim of this observational study is to evaluate the quality of life in patients with congenital afibrinogenemia using the Haemo-QoL SF for kids and the Haem-A-QoL for adult patients.

Clinical Trial Description

In this observational study, children and adults suffering from congenital afibrinogenemia confirmed by biology will be enrolled. All patients will receive a questionnaire on quality of life in their own language during a routine visit and filled out by the patient at home. A general questionnaire will be filled out by the patient's physician. ;

Study Design

Related Conditions & MeSH terms

Clinical Trial Details

NCT number	NCT03484065
Study type	Observational
Source	University Hospital, Geneva
Contact
Status	Completed
Phase
Start date	June 2016
Completion date	June 2020

View Details

See also
	Status	Clinical Trial	Phase
	Completed	`NCT03920332` - Pregnancy and Fibrinogen Disorders
	Completed	`NCT02094430` - Human Fibrinogen Concentrate (FGTW) in Pediatric Patients With Congenital Fibrinogen Deficiency	Phase 2/Phase 3